Health Research Alliance: A National Organization Fostering Links Between Reseearch and Practice

Bulletin:

Health Research Alliance members:
Check your calendar now to make sure you have reserved the dates for the spring, 2011 Members' Meeting: April 12-13, 2012, at the Liberty Hotel in Boston. Many thanks to our co-hosts: The Donaghue Foundation, the New York Stem Cell Foundation and The Medical Foundation, a division of Health Resources in Action. Expect to receive registration information by email in early February.
Health Research Alliance members: It is not too early to mark your calendars for the fall, 2012 Members' Meeting! The meeting has been scheduled for September 6-7, 2012, and will be hosted by The Foundation for the National Institutes of Health in Bethesda, Maryland.
Is your organization interested in becoming a member of the Health Research Alliance? Find out more.
Health Research Alliance
P.O. Box 13901
21 T. W. Alexander Drive
Research Triangle Park,
North Carolina 27709
AACR Foundation for the Prevention and Cure of Cancer
www.aacrfoundation.org
AACR Foundation for the Prevention and Cure of CancerThe AACR Foundation accelerates progress in the conquest of cancer by providing financial support for scientific research, education, and communication. The Foundation funds programs deemed by the American Association for Cancer Research to be of the highest priority and impact. The Association's purposes are to foster research in cancer and related biomedical science; accelerate the development of new research findings among scientists and other dedicated to the conquest of cancer; promote science education and training and advance the understanding of cancer etiology, prevention, diagnosis, and treatment throughout the world. Founded in 1907, the Association is the nation's oldest cancer research organization, currently representing 26,000 basic scientists, clinicians, epidemiologists, and other oncology-related specialists in the United States and 60 countries.

Alliance for Cancer Gene Therapy
www.acgtfoundation.org
Alliance for Cancer Gene TherapyThe mission of ACGT is to support the extraordinary potential offered by cell and gene therapy as an innovative model for effective and safe treatment of all types of cancers. Founded in 2001, ACGT is the only public charity dedicated exclusively to investing in research to promote cancer cell and gene therapies. ACGT funds basic research and clinical translational projects in leading research institutions throughout the US. All our projects have met a rigorous set of scientific standards determined by a preeminent 18-member Scientific Advisory Council. 100% of all donations go directly to fund innovative research for all forms of cancer, with administrative expenses funded separately. ACGT is a recipient of the BBB Wise Giving Alliance seal of approval.

Alzheimer's Association
www.alz.org
Alzheimer's AssociationThe Alzheimer's Association, the world leader in Alzheimer research, care and support, is the first and largest voluntary health organization dedicated to finding prevention methods, treatments and an eventual cure for Alzheimer's. Our mission is to eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health. Our toll-free helpline provides reliable information, referrals and support in 140 languages: 1.800.272.3900.

Alzheimer's Drug Discovery Foundation
www.alzdiscovery.org
Alzheimer's AssociationThe ADDF is the only public charity whose sole mission is to accelerate the discovery and development of drugs to prevent, treat and cure Alzheimer's disease, related dementias and cognitive aging. Since 1998, the ADDF has granted more than $45 million to fund over 325 Alzheimer's drug discovery programs in academic centers and biotechnology companies in 17 countries.

American Brain Tumor Association
www.abta.org
Alzheimer's AssociationSince its inception in 1973, the American Brain Tumor Association has played a leading role in advancing brain tumor research and enhancing patient care and support.

The American Brain Tumor Association was the first national organization dedicated to funding brain tumor research. Today, we offer five formal grant programs for scientists working toward breakthroughs in brain tumor diagnosis, treatment and care. The scope of those programs addresses basic, translational, clinical, and discovery science. Our legacy fellowship program continues to foster the careers of promising researchers. We also partner with other professional organizations to fund research opportunities and collaborative research projects. For patients and families, ABTA provides an extensive library of brain tumor information, care and support materials and resources.

American Cancer Society
www.cancer.org
American Cancer SocietyThe American Cancer Society is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service. The aim of the Society's research program is to determine the causes of cancer and to support efforts to prevent and cure the disease. The Society is the largest source of private, nonprofit cancer research funds in the United States, second only to the federal government in total dollars spent. The research program focuses primarily on peer-reviewed projects initiated by beginning investigators working in leading medical and scientific institutions nationwide. The research program consists of three components: extramural grants, intramural epidemiology and surveillance research, and the intramural behavioral research center. The Society is committed to fighting cancer through programs of research, education, patient service, advocacy, and rehabilitation. See our website for details on all our programs.

American Diabetes Association
www.diabetes.org
American Diabetes AssociationThe American Diabetes Association is the nation's leading nonprofit health organization providing diabetes research, information and advocacy. Founded in 1940, the American Diabetes Association conducts programs in all 50 states and the District of Columbia, reaching hundreds of communities. The mission of the Association is to prevent and cure diabetes and to improve the lives of all people affected by diabetes. To fulfill this mission, the American Diabetes Association funds research, publishes scientific findings, provides information and other services to people with diabetes, their families, health professionals and the public. The Association is also actively involved in advocating for scientific research and for the rights of people with diabetes.

American Federation for Aging Research
www.afar.org
www.infoaging.org
American Federation for Aging Research, (AFAR)The American Federation for Aging Research (AFAR) is a leading, not-for-profit organization supporting biomedical aging research. Since 1981, AFAR has awarded approximately $124 million to more than 2,600 talented scientists. The important work AFAR supports leads to a better understanding of aging processes and to improvements in the health of all people as they age.

American Heart Association
General: www.heart.org/HEARTORG/
Science Professionals: my.americanheart.org/portal/professional
American Heart AssociationThe American Heart Association (AHA) is a national voluntary health agency dedicated to building healthier lives, free of cardiovascular diseases and stroke. The American Stroke Association is a division of the American Heart Association. The association's 2020 health impact goal is to improve the cardiovascular health of all Americans by twenty percent while reducing deaths from cardiovascular diseases and stroke by twenty percent. To accomplish this, the association strives to raise public awareness about healthy lifestyles, enhance the focus of prevention among healthcare providers, as well as provide funding to research programs that will enrich the existing pool of evidence-based research and identify new ways to prevent, detect and treat cardiovascular disease and stroke. The American Heart Association includes the National Center (located in Dallas, Texas) and 12 seven affiliates' offices that cover across the United States and Puerto Rico.

Arthritis Foundation
www.arthritis.org
Arthritis FoundationThe Arthritis Foundation is the only national, voluntary health agency seeking the causes, cures, preventions and treatments for the more than 100 forms of arthritis. The Foundation has 150 chapters and service points nationwide to provide community-based programs and to raise funds. The Arthritis Foundation is a volunteer-driven organization with program, research, budget and policy decisions made by volunteer committees. Arthritis Foundation efforts center on the three-fold mission of the organization:prevention, control andcure of arthritis trough research, public health and public policy efforts. The Arthritis Foundation currently provides nearly $20 million in grants to nearly 300 researchers to help find a cure, prevention or better treatment for arthritis. The Arthritis Foundation's sponsorship of research for more than 50 years has resulted in major treatment advances for most arthritis diseases.

Autism Speaks
www.autismspeaks.org
Autism SpeaksAt Autism Speaks, our goal is to change the future for all who struggle with autism spectrum disorders.

We are dedicated to funding global biomedical research into the causes, prevention, treatments, and cure for autism; to raising public awareness about autism and its effects on individuals, families, and society; and to bringing hope to all who deal with the hardships of this disorder. We are committed to raising the funds necessary to support these goals.

Autism Speaks aims to bring the autism community together as one strong voice to urge the government and private sector to listen to our concerns and take action to address this urgent global health crisis. It is our firm belief that, working together, we will find the missing pieces of the puzzle.

Autism Speaks. It's time to listen.

Avon Foundation for Women
www.avonfoundation.org
Avon Foundation for WomenThe Avon Foundation for Women has been improving and saving women's lives since it was founded in 1955, and we are proud to be the largest corporate-affiliated philanthropy dedicated to women's causes globally. Today our mission is focused on breast cancer and domestic violence, as well as emergency and disaster relief, touching lives across the country and around the world. The Avon Breast Cancer Crusade was launched in 1992 and over the last 18 years, Avon philanthropy has raised and donated almost $700 million to breast cancer programs around the world. Our funds support cutting-edge research to understand the causes of and to develop new ways to prevent breast cancer as well as programs that enable all patients to access quality screening and care. Beneficiaries of the Avon Breast Cancer Crusade range from leading cancer research and clinical centers to community-based, non-profit breast health education programs.

Burroughs Wellcome Fund
www.bwfund.org
Burroughs Wellcome FundThe Burroughs Wellcome Fund is an independent private foundation dedicated to advancing the medical sciences by supporting research and other scientific and educational activities. Within this broad mandate, BWF's general strategy is to help scientists early in their careers develop as independent investigators and to support investigators who are working in or entering fields in the basic medical sciences that are undervalued or in need of encouragement. We channel our financial support primarily through competitive peer-reviewed award programs, which encompass five major categories: basic biomedical sciences, infectious diseases, interfaces in science, translational research, and science education. BWF makes approximately $35 million in grants annually to institutions in the United States and Canada.

Cancer Research Institute
www.cancerresearch.org
Cancer Research InstituteSince its inception in 1953, the Cancer Research Institute (CRI) has had a singular mission—to foster research that will yield an understanding of the immune system and its response to cancer, with the ultimate goal of developing immunological methods for the treatment, control, and prevention of the disease. CRI supports scientists at all stages of their careers and funds every step of the research process, from basic laboratory studies to clinical trials testing novel immunotherapies. Guided by a Scientific Advisory Council, which includes 4 Nobel Prize winners and 30 members of the National Academy of Sciences, CRI awards fellowships and grants to scientists around the world. Additionally, the Institute serves as the integrating force and facilitator of interdisciplinary global research collaborations. CRI has thus become a catalyst for accelerating the development of cancer vaccines and antibody therapies that are bringing new hope and new options to cancer patients.

Children's Tumor Foundation
www.ctf.org
Children's Tumor FoundationThe Children's Tumor Foundation (CTF) was founded in 1978, and funds research and clinical initiatives focused on neurofibromatosis (NF). NF includes NF1, NF2 and Schwannomatosis. These can all cause tumors in the nervous system as well as complications including bone dysplasia, learning disabilities, deafness, blindness and intractable pain. NF tumors are often benign but can significantly compromise quality of life and they can be fatal. There is currently no drug treatment for NF. CTF support NF research bench-to-bedside:

  1. Young Investigator Awards: Two year postdoctoral funding
  2. Drug Discovery Initiative (DDI): $27,500 seed grants for preclinical screening of candidate NF treatments
  3. The DDI NF Preclinical Consortium: a $4M four-year multi-center program to accelerate the identification of effective drug therapies.
  4. The NF Clinic Network (CTF-NFCN): Recognizes Clinics provide consensus guideline- based care for NF. These Clinics may receive $50,000 funding for an NF Clinic Coordinator.

Conquer Cancer Foundation
www.ConquerCancerFoundation.org
The Conquer Cancer FoundationThe Conquer Cancer Foundation advances breakthrough cancer research and shares new discoveries and expanded knowledge about cancer with doctors, patients, and families worldwide. We support a wide range of research initiatives designed to provide insight into virtually every aspect of cancer, from prevention and diagnosis to treatment and survivorship. We place special emphasis on funding the work of promising young scientists Ð helping to launch their careers and build the future of cancer research. We help to ensure that all people have access to high-quality cancer care by supporting training opportunities for doctors and by funding research to gain insight into health care disparities. We support the educational and advocacy work of our affiliate, the American Society of Clinical Oncology (ASCO) Ð and we channel the expertise of the Society's nearly 30,000 members in support of our mission. We help to keep doctors, patients, and families informed by supporting the development of an array of educational resources, including ASCO's award-winning website, Cancer.Net.

Damon Runyon Cancer Research Foundation
www.damonrunyon.org
Damon Runyon Cancer Research FoundationThe Damon Runyon Cancer Research Foundation is a public charity located in New York City. Since its founding in 1946, the Foundation's mission has been to identify and support exceptional early career scientists. Our funding portfolio encompasses a broad spectrum of basic and translational research relevant to all forms of cancer. The Foundation has three prestigious scientific award programs: the Damon Runyon Postdoctoral Fellowship, the Damon Runyon Scholar Award (for junior faculty conducting primarily basic research) and the Damon Runyon Clinical Investigator Award (for junior faculty engaged in translational research). In 2005, the Foundation will invest nearly $12 million in approximately 175 of the best young scientists working at more than 50 of the leading institutions and cancer centers around the country.

The Donaghue Foundation
www.donaghue.org
Donaghue FoundationThe Patrick and Catherine Weldon Donaghue Medical Research Foundation provides grants for medical research of practical benefit. The Foundation supports work in a wide range of disciplines aimed at improving mental and physical health, advancing clinical interventions and the delivery of health services, and improving community and public health. The Foundation is particularly interested in funding research that has the potential for direct, near-term impact to improve health and in supporting initiatives designed to promote the transfer of knowledge to useful applications. Most of the Foundation's grants are made to Connecticut institutions. The Donaghue Foundation was established in 1991 by the will of Ethel Donaghue in memory of her parents.

Doris Duke Charitable Foundation
www.ddcf.org/mrp
Doris Duke Charitable FoundationEstablished in 1996, the mission of the Doris Duke Charitable Foundation is to improve the quality of people's lives through grants supporting the performing arts, environmental conservation, medical research and the prevention of child abuse, and through preservation of the cultural and environmental legacy of Doris Duke's properties. The mission of the Medical Research Program is to support the prevention, treatment and cure of human disease. The Medical Research Program strives to accomplish its mission through strategies that build the clinical research career ladder and foster innovation in clinical research.

The Ellison Medical Foundation
www.ellisonfoundation.org
The Ellison Medical FoundationThe mission of the Ellison Medical Foundation, established and supported by Lawrence J. Ellison, is to foster creativity in basic biomedical research.

Since its founding in 1997, the Foundation has supported biomedical research through grant programs designed to provide both experienced investigators and newly independent scientists with the opportunity to take risks and pursue bold and innovative research directions. In particular, the Foundation seeks to stimulate novel and creative research that has rigorous scientific foundations, but is not adequately funded by traditional sources. Currently, the primary emphasis of the Foundation's activities is to support fundamental research to understand how humans and other organisms age and protect themselves from age-associated diseases and disabilities.

Flinn Foundation
www.flinn.org
Flinn FoundationThe Flinn Foundation is a private philanthropic trust that was created in 1965 by Dr. and Mrs. Robert S. Flinn to improve the quality of life in Arizona. The Phoenix-based Foundation supports the advancement of the biosciences in Arizona, as well as a major college scholarship program at Arizona's universities and an initiative to position arts and culture as a component of Arizona's knowledge-based economy.

Fondation Leducq
www.fondationleducq.org
Fondation LeducqFondation Leducq, based in Paris, France, is dedicated to improving human health through international efforts to combat cardiovascular disease. With a Scientific Advisory Committee made up of leading medical experts from Europe and North America, the foundation has made collaborative research in cardiovascular and neurovascular disease the focus of its grant program, the Transatlantic Networks of Excellence. With this program the Leducq Foundation supports teams of scientists, comprised of European and North American investigators, who work together to solve some of the most difficult problems in cardiovascular research. It is hoped that through their joint efforts we will advance our knowledge of, and ability to treat, one of the leading causes of death and disability in the industrialized as well as the developing world.

Foundation Fighting Blindness
www.FightBlindness.org
Foundation Fighting BlindnessThe urgent mission of the Foundation Fighting Blindness is to drive research that will provide preventions, treatments, and cures for people affected by retinitis pigmentosa, macular degeneration, Usher syndrome, and the entire spectrum of retinal degenerative diseases. Since its establishment in 1971, the Foundation has raised more than $400 million to fund thousands of studies at hundreds of prominent institutions. Throughout its history, FFB has maintained an extraordinary commitment to directing as much revenue as possible for research. More than $300 million has been directly invested in research and public health education programs, an average of 75 percent. This has made FFB the world's leading non-governmental source for retinal disease research funding. FFB-funded investigators are exploring a variety of areas including: genetic discovery, gene therapy, cellular biology, nutrition, and retinal prosthetics. The Foundation's Scientific Advisory Board - leaders in retinal disease science and clinical care - provide oversight and guidance. FFB established the National Neurovision Research Institute - www.nnri.info - to accelerate the translation of laboratory based research into clinical trials for treatments and cures of retinal degenerative diseases.

Foundation for the National Institutes of Health
www.fnih.org
The Foundation for the National Institutes of HealthThe Foundation for the National Institutes of Health fosters public health through scientific discovery, translational research, and the dissemination of research results through specially-configured, high-impact public-private partnerships consistent with the priorities of National Institutes of Health (NIH). The Foundation helps to underwrite biomedical initiatives that might not be attractive for private funding alone, or for one reason or another are not appropriate for wholly public funding. With the goals of NIH as its guide, the Foundation serves both the public and private sectors, helping them achieve significant breakthroughs in human health in areas of interest that overlap with those of NIH.

The Gerber Foundation
www.gerberfoundation.org
The Gerber FoundationThe Gerber Foundation is an independent, private foundation dedicated to improving the health and nutrition of infants and young children by supporting medical research targeted from pre-birth to 3 years of age. Major categories of focus are general health and chronic disease issues, nutrition, and environmental hazards as they may affect this age group. Within this mandate, the Foundation focuses on translational and clinical research and support for early career development of investigators. The Gerber Foundation awards approximately $3.5 million in grants annually to institutions within the United States.

Heart Rhythm Society
www.HRSonline.org
Heart Rhythm SocietyThe Heart Rhythm Society is the international leader in science, education and advocacy for cardiac arrhythmia professionals and patients, and the primary information resource on heart rhythm disorders. Its mission is to improve the care of patients by promoting research, education and optimal health care policies and standards.

Howard Hughes Medical Institute
www.hhmi.org
Howard Hughes Medical InstituteThe Howard Hughes Medical Institute, founded in 1953 by aviator-industrialist Howard R. Hughes, is a medical research organization dedicated to biomedical research and education. Its principal objectives are the advancement of fundamental knowledge in the biomedical sciences and the application of that knowledge to alleviate disease and promote health. HHMI employs scientists to carry out research across a broad array of subjects affecting human health, with laboratories located throughout the United States at academic medical centers, universities, and other scientific institutions under long-term research collaboration agreements. Through its grants and special programs, HHMI seeks to strengthen science education and biomedical research by supporting current and future leaders to advance scientific knowledge, develop educational products, and implement outstanding educational practices. Scheduled to open in 2006, HHMI's Janelia Farm Research Campus in Loudoun County, Virginia, will house small research groups that will explore fundamental biomedical questions in a highly collaborative, interdisciplinary culture.

Hydrocephalus Association
www.hydroassoc.org
Hydrocephalus AssociationThe Hydrocephalus Association (HA) is working to eliminate the challenges of hydrocephalus and improve the lives of over one million people and families living with this condition. With a national network of over 30 community partners the HA provides support, education, and advocacy to thousands of families each month, and is aggressively executing a new research agenda aimed at improving lives and seeking ways to prevent and/or cure hydrocephalus.

Juvenile Diabetes Research Foundation International
www.jdrf.org
Juvenile Diabetes Research Foundation InternationalJDRF is the leading charitable funder and advocate of type 1 (juvenile) diabetes research worldwide. The mission of JDRF is to find a cure for diabetes and its complications through the support of research. Type 1 diabetes is a disease that strikes children suddenly and requires multiple injections of insulin daily or a continuous infusion of insulin through a pump. Insulin, however, is not a cure for diabetes, nor does it prevent its eventual and devastating complications, which may include kidney failure, blindness, heart disease, stroke, and amputation. Since its founding in 1970 by parents of children with juvenile diabetes, JDRF has awarded more than $800 million to diabetes research, including more than $86 million in FY2004. In FY2004, the Foundation funded 500 centers, grants and fellowships in 20 countries.

W.M. Keck Foundation
www.wmkeck.org
W.M. Keck FoundationThe W.M. Keck Foundation was established in 1954 in Los Angeles by William Myron Keck, founder of The Superior Oil Company. Following the ideals of its founder, the Keck Foundation's objective is to support outstanding science, engineering and medical research, undergraduate education, and, in Southern California, community service projects that will have a significant impact in solving complex issues and problems. In the area of biomedical research, the Keck Foundation funds basic research projects proposed by early career and more senior researchers, the development of new scientific instruments and technologies and the establishment of unique laboratories at universities and research institutes. In its Southern California Program the Foundation places special emphasis on children, youth and their families, with the goal of providing safe, healthy, supportive environments. Through this program the Keck Foundation funds health care projects and programs in Southern California hospitals and clinics.

Susan G. Komen for the Cure®
www.komen.org
Susan G. Komen for the CureNancy G. Brinker promised her dying sister, Susan G. Komen, that she would do everything in her power to end breast cancer forever. In 1982, that promise became Susan G. Komen for the Cure® and launched the global breast cancer movement. Today, Komen for the Cure is the world's largest grassroots network of breast cancer survivors and activists fighting to save lives, empower people, ensure quality care for all and energize science to find the cures. Thanks to events like the Komen Race for the Cure, we have invested $1.9 billion to fulfill our promise, becoming the largest source of nonprofit funds dedicated to the fight against breast cancer in the world. For more information about Susan G. Komen for the Cure, breast health or breast cancer, visit www.komen.org or call 1-877 GO KOMEN

The Leukemia & Lymphoma Society
www.lls.org
The Leukemia & Lymphoma SocietyThe Leukemia & Lymphoma Society (LLS) is the world's largest voluntary health organization dedicated to funding blood cancer research, education and patient services. The Society's mission: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families. Since its founding in 1949, LLS has invested more than $750 million for research specifically targeting blood cancers through its grants program and more recently, the Therapy Acceleration Program (TAP). The Society's Home Office is based in White Plains, NY. Some Home Office staff are also based at regional offices throughout the United States. To learn more about us, use our Chapter Finder to find the LLS chapter in your area or contact us at www.lls.org.

Lupus Foundation of America, Inc.
www.lupus.org
The Lupus Foundation of AmericaThe Lupus Foundation of America, Inc. (LFA) is the nation's foremost national nonprofit voluntary health organization dedicated to finding the causes of and cure for lupus and providing support and services to all people affected by the disease. The LFA manages comprehensive programs of lupus research, education, patient services, and advocacy through a national network of nearly 300 chapters, affiliates, and support groups.

Lymphoma Research Foundation
www.lymphoma.org
Lymphoma Research FoundationThe Lymphoma Research Foundation (LRF) is the nation's largest non-profit organization devoted exclusively to funding innovative lymphoma research and providing people with lymphoma and healthcare professionals with up-to-date information about this type of cancer. LRF's mission is to eradicate lymphoma and to serve those touched by this disease.

March of Dimes
www.marchofdimes.com
March of DimesThe March of Dimes Foundation is a national voluntary health agency with chapters in all 50 states, the District of Columbia, and Puerto Rico. Its mission is to improve the health of babies by preventing birth defects and infant mortality. The March of Dimes Foundation accomplishes this with its programs of research, community services, education, and advocacy. The organization was established in 1938 by President Franklin D. Roosevelt to lead research efforts on polio, leading to the development of the Salk and Sabin vaccines. This unique collaboration of citizens and scientific researchers was the nation's first large-scale biomedical initiative led by a charitable organization. Over the years, the March of Dimes Foundation initiatives have helped spare many babies from death or lifelong disability. In 2003, the March of Dimes Foundation launched a multi-year campaign to address the increasing rate of premature birth in the United States.

The Medical Foundation
a division of Health Resources in Action
www.hria.org
The Medical FoundationThe Medical Foundation division works with private individuals, bank trusts, and family foundations to design customized grant programs that accelerate medical discoveries. Each year, internationally recognized investigators and physician scientists from across the United States and Europe serve on our eleven Scientific Review Committees. Reviewers provide critical and unbiased evaluations of all applications and research progress reports. Each year, the Medical Foundation's clients support more than 160 investigators in basic biomedical, translational and clinical research and award close to $16 million. Health Resources in Action (HRiA), the parent organization of The Medical Foundation division, is a nonprofit organization dedicated to advancing public health and medical research.

Melanoma Research Alliance
www.curemelanoma.org
The Medical FoundationThe Melanoma Research Alliance (MRA) is a 501(c)3 public charity whose mission is to accelerate the pace of scientific discovery and its translation in order to eliminate suffering and death due to melanoma. MRA funds research worldwide to better prevent, diagnose and treat melanoma. Our ultimate goal is to find a cure. Founded in 2007 under the auspices of the Milken Institute with the generous founding support of Debra and Leon Black, MRA has become the largest private funder of melanoma research.

MPN Research Foundation
www.mpnresearchfoundation.org
MPN FoundationThe MPN Research Foundation (formerly MPD Foundation) was founded by patients, for patients. The primary mission is to stimulate and finance meaningful research in pursuit of new treatments and eventually a cure for the myeloproliferative neoplasms: polycythemia vera, essential thrombocythemia and myelofibrosis. The Foundation values innovative and collaborative scientific investigation. In addition, the MPN Research Foundation serves as a resource to patients and their families, providing information via our website, newsletters and symposia about drug development, clinical trials and patient support activities.

Mt. Sinai Health Care Foundation
www.mtsinaifoundation.org
The Mt. Sinai Health Care FoundationFormed as a result of the 1996 sale of Cleveland's Mt. Sinai Medical Center and related hospitals, The Mt. Sinai Health Care Foundation is an independent grantmaker affiliated with the Jewish Community of Cleveland. The Foundation's purpose is to assist Greater Cleveland's organizations and leaders to improve the health and well-being of the Jewish and general communities now and for generations to come. Among its strategic grantmaking objectives is to advance academic medicine and bioscience, to both expand the bioscience sector of the regional economy and further Cleveland's prominence in this area. The Foundation's assets at December 31, 2008, exceeded $130 million.

Multiple Myeloma Research Foundation
www.themmrf.org
Multiple Myeloma Research Foundation (MMRF)The Multiple Myeloma Research Foundation (MMRF) was founded by twin sisters Karen Andrews and Kathy Giusti, soon after Kathy was diagnosed with multiple myeloma. The mission of the MMRF is to relentlessly pursue innovative means that accelerate the development of next-generation multiple myeloma treatments to extend the lives of patients and lead to a cure.

As the world's number-one private funder of multiple myeloma research, the MMRF has raised over $120 million since its inception to fund more than 90 laboratories worldwide. An outstanding 93% of funds are directed toward research and related programming.

The MMRF is currently supporting 40 new compounds and approaches in clinical trials and pre-clinical studies and has initiated 19 clinical trials through its research consortium, the Multiple Myeloma Research Consortium (MMRC).

The New York Stem Cell Foundation
www.nyscf.org
The New York Stem Cell FoundationThe New York Stem Cell Foundation (NYSCF) was founded in 2005 to accelerate cures for debilitating diseases through stem cell research. The Foundation conducts cutting edge research at its own independent laboratory and provides grants to outstanding investigators at other research institutions. NYSCF also invests in the next generation of stem cell researchers through The NYSCF Fellowship Program, The NYSCF Investigator Program, which support exceptionally promising early career scientists doing innovative translational stem cell research, and The NYSCF Ð Robertson Prize. The Foundation plays a vital role in educating both scientists and the public about stem cell research through an active annual program of conferences and symposia. For more information, visit www.nyscf.org.

Pancreatic Cancer Action Network
www.pancan.org
Pancreatic Cancer Action NetworkThe Pancreatic Cancer Action Network is a nationwide network of people dedicated to working together to advance research, support patients and create hope for those affected by pancreatic cancer.

The organization raises money for direct private funding of research—and advocates for more aggressive federal research funding of medical breakthroughs in prevention, diagnosis and treatment of pancreatic cancer. The Pancreatic Cancer Action Network fills the void of information and options by giving patients and caregivers reliable, personalized information they need to make informed decisions. The organization helps support individuals and communities all across the country work together to raise awareness and funds to find a cure for pancreatic cancer.

Parent Project Muscular Dystrophy
www.parentprojectmd.org
Pancreatic Cancer Action NetworkParent Project Muscular Dystrophy (PPMD) is the largest nonprofit organization in the US focused entirely on Duchenne muscular dystrophy.

Since 1994, PPMD has improved the treatment, quality of life, and long-term outlook for all individuals affected by Duchenne through research, advocacy, education, and compassion. Because of our efforts, families affected by Duchenne have better access to care information, research is moving forward, and legislation now exists funding Duchenne programs.

Parent Project Muscular Dystrophy is recognized around the world as the leader in the Duchenne community. We hold the highest ethical standards and consistently receive high marks from watchdog organizations.

We take a comprehensive approach in the fight against Duchenne-funding research, raising awareness, promoting advocacy, connecting the community, and broadening treatment options. Only this comprehensive approach will lead to the day that 100% of those diagnosed can turn to a treatment that will end Duchenne muscular dystrophy.

Parkinson's Disease Foundation
www.pdf.org
Parkinson's Disease FoundationThe Parkinson's Disease Foundation® (PDF®) is a leading national presence in Parkinson's disease research, education and public advocacy. Since its founding in 1957, PDF has funded over $85 million worth of scientific research, supporting the work of leading scientists throughout the world, and over $34 million to support people living with Parkinson's through our education and advocacy programs. In addition to supporting teams of researchers in their quest to understand Parkinson's and find a cure, an important component of PDF's research focus is addressing the barriers to the acceleration of clinical research - beginning with the training of young neurologists who are needed to conduct clinical research; supporting the collaborative initiatives among the largest group of Parkinson's clinical researchers in the US; and creating a network of more than 100 research advocates from 36 states who are working to bring educated consumer voices to important issues in Parkinson's therapy development.

The Pew Biomedical Programs
www.pewscholars.org and www.pewlatinfellows.orgThe Pew Biomedical Programs The Pew Biomedical Programs, part of The Pew Charitable Trusts, include the Pew Scholars Program in the Biomedical Sciences and the Pew Latin American Fellows Program. The Pew Scholars Program in the Biomedical Sciences provides $240,000 in funding over four years to young investigators of outstanding promise in science relevant to the advancement of human health who are in their first few years of their appointment at the assistant professor level. The funds may be used, at the discretion of the Pew Scholar, for personnel, equipment, supplies, or travel directly related to the Scholar's research as to best advance their research and career. The Pew Latin American Fellows Program in the Biomedical Sciences provides support for young scientists from Latin America to receive postdoctoral training in the United States. The Pew Fellowship provides a $30,000 salary stipend in each of two years and an additional $35,000 payment when the Fellow confirms plans to return to Latin America within a maximum of four years from the start date of the grant. The $35,000 portion of the award is for the purchase of supplies and equipment to help establish his/her independent laboratory upon the Fellow's return to Latin America.

Rita Allen Foundation
Rita Allen Foundation www.ritaallen.org
Based in Princeton, New Jersey, the Rita Allen Foundation was established in 1953 and has for many years sponsored a major grants program for researchers in science and medicine. Our Scholars' program provides funding to leading medical research institutions selected by a world-class Scientific Advisory Committee. This support allows scientists in the early stages of their careers to innovate and experiment. With our assistance, many Rita Allen Foundation Scholars have made important discoveries and advances.

Since 2009, the Rita Allen Foundation has expanded its impact and now invests in other transformative ideas to leverage their growth and promote breakthrough solutions to significant problems. The Rita Allen Foundation's areas of active interest include investing in young leaders in the sciences and social innovation, promoting civic literacy and engagement, and building stronger communities.

Simons Foundation
Simons Foundation www.simonsfoundation.org
www.sfari.org
The mission of the Simons Foundation is to advance the frontiers of research in the basic sciences and mathematics.

In the life sciences, institutional and targeted grants support research in systems biology, human evolution and math in biology. The Simons Foundation Autism Research Initiative (SFARI) seeks to understand the causes of autism and thereby improve the diagnosis, treatment, and prevention of this and related developmental disorders. SFARI applications are solicited from individuals who will conduct bold, imaginative, rigorous research relevant to this spectrum of prevalent disorders.

The Foundation supports the work of institutions and organizations that give many of the world's best mathematicians and physicists the opportunity to work and interact in environments designed to enhance progress. Part of our mission is also to train students and educators in these disciplines, and to organize programs that introduce the wonders of these fields to children and to the general public.

Sjögren's Syndrome Foundation
www.sjogrens.org
Sjogren's Syndrome FoundationThe Sjögren's Syndrome Foundation (SSF) promotes greater awareness, improved treatments and a cure for the four million Americans and many more worldwide who suffer from Sjögren's syndrome, a serious autoimmune disease. We recognize that medical and scientific research brings hope for a better future.

A public not-for-profit organization, the Foundation serves patients and the many people who support and treat them. Our Research Program promotes basic science and clinical investigations into the cause, prevention, diagnosis, treatment, and ultimately a cure for this prevalent autoimmune disease. We encourage and support research into Sjögren's syndrome by offering annual research grants and student fellowships, recognizing exceptional young investigators through outstanding abstract awards, initiating scientific meetings and workshops, and partnering with patient advocacy groups, foundations, and federal health agencies to increase awareness of the need for research in Sjögren's syndrome.

Samuel Waxman Cancer Research Foundation
www.waxmancancer.org
Samuel Waxman Cancer Research FoundationThe Samuel Waxman Cancer Research Foundation is an international organization dedicated to curing and preventing cancer. The Foundation is a pioneer in cancer research, focusing on uncovering the causes of cancer and reprogramming cancer cells.

We dedicate ourselves to delivering tailored, minimally toxic treatments to patients. Our mission is to eradicate cancer by bridging the gap between lab science and the patient.

Through our collaborative group of world-class scientists, the Institute Without Walls, investigators share information and tools to speed the pace of cancer research. Since our inception in 1976, the Foundation has awarded more than $75 million to support the work of more than 175 researchers across the globe.