Health Research Alliance: A National Organization Fostering Links Between Reseearch and Practice

Bulletin:

Health Research Alliance members: The March 2010 Members' Meeting will be hosted by the Mt. Sinai Health Care Foundation in Cleveland, Ohio, on March 17-18, 2010. Those who have registered for the meeting should receive an email with final details no later than March 10, 2010. The most current meeting agenda and background documents for the meeting have been posted on the Members' Meeting and News page.

Please mark your calendar now for the September Members' Meeting: September 29-30, 2010, to be hosted by the Alzheimer's Association in Chicago.
The 2008 HRA National Conference, "Accelerating Medical Discovery Through Strategic Philanthropy," in March 2008 was an exciting event. Conference proceedings are posted on the Publications page under the Resources tab on the home page. Conference presentations are posted for HRA member organizations on the HRA National Conference page in the Members-Only portion of the website.
Is your organization interested in becoming a member of the Health Research Alliance? Find out more.
Health Research Alliance
P.O. Box 13901
21 T. W. Alexander Drive
Research Triangle Park,
North Carolina 27709
AACR Foundation for the Prevention and Cure of Cancer
www.aacrfoundation.org
AACR Foundation for the Prevention and Cure of CancerThe AACR Foundation accelerates progress in the conquest of cancer by providing financial support for scientific research, education, and communication. The Foundation funds programs deemed by the American Association for Cancer Research to be of the highest priority and impact. The Association's purposes are to foster research in cancer and related biomedical science; accelerate the development of new research findings among scientists and other dedicated to the conquest of cancer; promote science education and training and advance the understanding of cancer etiology, prevention, diagnosis, and treatment throughout the world. Founded in 1907, the Association is the nation's oldest cancer research organization, currently representing 26,000 basic scientists, clinicians, epidemiologists, and other oncology-related specialists in the United States and 60 countries.

Alliance for Cancer Gene Therapy (ACGT)
www.acgtfoundation.org
Alliance for Cancer Gene TherapyThe mission of ACGT is to support the extraordinary potential offered by gene therapy as a revolutionary model for effective and safe treatment of all types of cancers. Founded in 2001, ACGT is the only public charity dedicated exclusively to investing in research to promote cancer gene therapies. In just seven years, ACGT has awarded more than $19.8 million to fund 32 basic research and clinical translational research projects that have met a rigorous set of scientific standards determined by a preeminent 18-member Scientific Advisory Council. 100% of all donations go directly to fund innovative gene therapy research for all forms of cancer, with administrative expenses funded separately. ACGT is a recipient of the BBB Wise Giving Alliance seal of approval.

Alzheimer's Association
www.alz.org
Alzheimer's AssociationThe Alzheimer's Association, the world leader in Alzheimer research and support, is the first and largest voluntary health organization dedicated to finding prevention methods, treatments and an eventual cure for Alzheimer's. Our mission is to eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health. Our toll-free helpline provides reliable information, referrals and support in 140 languages: 1.800.272.3900.

Alzheimer's Drug Discovery Foundation
www.alzdiscovery.org
Alzheimer's AssociationAlzheimer's Drug Discovery Foundation (ADDF) is the only public charity whose sole mission is to accelerate the discovery and development of drugs to prevent, treat and cure Alzheimer's disease, related dementias and cognitive aging. We award grants to leading scientists conducting breakthrough drug discovery research. ADDF uses a venture philanthropy model to bridge the worldwide funding gap between basic research and later-stage development, using any return on investment to support new research. Since 1998, we have received over 2,500 requests to fund new ideas for Alzheimer's drugs. For all, we provided expert reviews and recommendations to advance their programs. We granted more than $37 million to fund over 270 Alzheimer's drug discovery programs in academic centers and biotechnology companies in 15 countries. ADDF has invested over $8 million in 40 biotechnology companies, which have received follow-on committments of over $1 billion.

American Cancer Society
www.cancer.org
American Cancer SocietyThe American Cancer Society is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service. The aim of the Society's research program is to determine the causes of cancer and to support efforts to prevent and cure the disease. The Society is the largest source of private, nonprofit cancer research funds in the United States, second only to the federal government in total dollars spent. The research program focuses primarily on peer-reviewed projects initiated by beginning investigators working in leading medical and scientific institutions nationwide. The research program consists of three components: extramural grants, intramural epidemiology and surveillance research, and the intramural behavioral research center. The Society is committed to fighting cancer through programs of research, education, patient service, advocacy, and rehabilitation. See our website for details on all our programs.

American Diabetes Association
www.diabetes.org
American Diabetes AssociationThe American Diabetes Association is the nation's leading nonprofit health organization providing diabetes research, information and advocacy. Founded in 1940, the American Diabetes Association conducts programs in all 50 states and the District of Columbia, reaching hundreds of communities. The mission of the Association is to prevent and cure diabetes and to improve the lives of all people affected by diabetes. To fulfill this mission, the American Diabetes Association funds research, publishes scientific findings, provides information and other services to people with diabetes, their families, health professionals and the public. The Association is also actively involved in advocating for scientific research and for the rights of people with diabetes.

American Heart Association
General: www.americanheart.org/presenter.jhtml?identifier=1200000
Science Professionals: my.americanheart.org/portal/professional
American Heart AssociationThe American Heart Association (AHA) is a national voluntary health agency dedicated to the reduction of disability and death from cardiovascular diseases and stroke. A division of the American Heart Association is the American Stroke Association, whose goal is to reduce stroke and risk by 25 percent by 2010. The association's 2010 goal is to reduce coronary heart disease, stroke and risk by 25 per cent as compared to the levels in 2000. To accomplish this, the association strives to raise public awareness about healthy lifestyles, enhance the focus of prevention among healthcare providers, as well as provide funding to research programs that will enrich the existing pool of evidence-based research and identify new ways to prevent, detect and treat cardiovascular disease and stroke. The American Heart Association includes the National Center (located in Dallas, Texas) and 12 affiliate offices that cover the United States and Puerto Rico.

Arthritis Foundation
www.arthritis.org
Arthritis FoundationThe Arthritis Foundation is the only national, voluntary health agency seeking the causes, cures, preventions and treatments for the more than 100 forms of arthritis. The Foundation has 150 chapters and service points nationwide to provide community-based programs and to raise funds. The Arthritis Foundation is a volunteer-driven organization with program, research, budget and policy decisions made by volunteer committees. Arthritis Foundation efforts center on the three-fold mission of the organization:prevention, control andcure of arthritis trough research, public health and public policy efforts. The Arthritis Foundation currently provides nearly $20 million in grants to nearly 300 researchers to help find a cure, prevention or better treatment for arthritis. The Arthritis Foundation's sponsorship of research for more than 50 years has resulted in major treatment advances for most arthritis diseases.

The ASCO Cancer Foundation
www.ascocancerfoundation.org
The ASCO FoundationThe ASCO Cancer Foundation supports educational programs of the highest quality in cancer care and prevention; facilitates the dissemination of information about cancer and cancer treatment to patients and their families; and, through its grants program, supports, encourages, and recognizes excellence in clinical research in the field of oncology.

Through partnerships with private businesses, foundations, and individuals, The ASCO Cancer Foundation obtains vital support for programs that inspire ingenuity in research, invigorate a new generation of oncologists, bring new treatments to great numbers of practitioners and their patients, and advocate for policy that enriches the lives of people living with cancer and their families.

Over the past 25 years, ASCO and The ASCO Cancer Foundation have funded the clinical research efforts of young investigators through its grants and awards programs. To date, more than 500 Young Investigator Awards (YIAs) and 155 Career Development Awards (CDAs) have been awarded, totaling more than $45 million. In 2004, the Foundation established the Advanced Clinical Research Award (ACRA) to support the work of senior investigators in the field. Nine ACRAs have been awarded since then, totaling $4 million in research funding. In 2008, the Translational Research Professorship (TRP) was created to support qualified individuals who are dedicated to bringing advances in basic sciences into the clinical arena and to mentoring other translational researchers. Two TRPs have been awarded, totaling $1 million.

Autism Speaks
www.autismspeaks.org
Autism SpeaksAt Autism Speaks, our goal is to change the future for all who struggle with autism spectrum disorders.

We are dedicated to funding global biomedical research into the causes, prevention, treatments, and cure for autism; to raising public awareness about autism and its effects on individuals, families, and society; and to bringing hope to all who deal with the hardships of this disorder. We are committed to raising the funds necessary to support these goals.

Autism Speaks aims to bring the autism community together as one strong voice to urge the government and private sector to listen to our concerns and take action to address this urgent global health crisis. It is our firm belief that, working together, we will find the missing pieces of the puzzle.

Autism Speaks. It's time to listen.

Avon Foundation
www.avonfoundation.org
Avon FoundationThe Avon Foundation, an accredited 501(c)(3) public charity, was founded in 1955 to improve the lives of women and their families. Now past our 50th anniversary milestone, the Foundation brings its mission to life through two focus areas: the fight against breast cancer and support for women's empowerment, including economic advancement and the issue of domestic violence. The Avon Breast Cancer Crusade, launched in 1992, has raised and awarded more than $400,000,000 worldwide through 2005, and now supports breast cancer programs in 50 countries to improve access to care and to find a cure for breast cancer, with a focus on the medically underserved. Funding supports breast cancer awareness and education; screening and diagnosis; access to treatment; support services; and scientific research. Beneficiaries range from leading cancer centers to community-based organizations, creating a powerful international network of medical and lay community partners focused on defeating breast cancer and ensuring access to care.

Burroughs Wellcome Fund
www.bwfund.org
Burroughs Wellcome FundThe Burroughs Wellcome Fund is an independent private foundation dedicated to advancing the medical sciences by supporting research and other scientific and educational activities. Within this broad mandate, BWF's general strategy is to help scientists early in their careers develop as independent investigators and to support investigators who are working in or entering fields in the basic medical sciences that are undervalued or in need of encouragement. We channel our financial support primarily through competitive peer-reviewed award programs, which encompass five major categories: basic biomedical sciences, infectious diseases, interfaces in science, translational research, and science education. BWF makes approximately $35 million in grants annually to institutions in the United States and Canada.

Cancer Research Institute
www.cancerresearch.org
Cancer Research InstituteSince its inception in 1953, the Cancer Research Institute (CRI) has had a singular mission—to foster research that will yield an understanding of the immune system and its response to cancer, with the ultimate goal of developing immunological methods for the treatment, control, and prevention of the disease. CRI supports scientists at all stages of their careers and funds every step of the research process, from basic laboratory studies to clinical trials testing novel immunotherapies. Guided by a Scientific Advisory Council, which includes 5 Nobel Prize winners and 28 members of the National Academy of Sciences, CRI awards fellowships and grants to scientists around the world. Additionally, the Institute serves as the integrating force and facilitator of interdisciplinary global research collaborations. CRI has thus become a catalyst for accelerating the development of cancer vaccines and antibody therapies that are bringing new hope and new options to cancer patients.

Children's Tumor Foundation
www.ctf.org
Children's Tumor FoundationThe Children's Tumor Foundation (CTF) was founded in 1978, and funds research and clinical initiatives focused on neurofibromatosis (NF). NF includes NF1, NF2 and Schwannomatosis. These can all cause tumors in the nervous system as well as complications including bone dysplasia, learning disabilities, deafness, blindness and intractable pain. NF tumors are often benign but can significantly compromise quality of life and they can be fatal. There is currently no drug treatment for NF. CTF support NF research bench-to-bedside:

  1. Young Investigator Awards: Two year postdoctoral funding
  2. Drug Discovery Initiative (DDI): $27,500 seed grants for preclinical screening of candidate NF treatments
  3. The DDI NF Preclinical Consortium: a $4M four-year multi-center program to accelerate the identification of effective drug therapies.
  4. The NF Clinic Network (CTF-NFCN): Recognizes Clinics provide consensus guideline- based care for NF. These Clinics may receive $50,000 funding for an NF Clinic Coordinator.

Damon Runyon Cancer Research Foundation
www.damonrunyon.org
Damon Runyon Cancer Research FoundationThe Damon Runyon Cancer Research Foundation is a public charity located in New York City. Since its founding in 1946, the Foundation's mission has been to identify and support exceptional early career scientists. Our funding portfolio encompasses a broad spectrum of basic and translational research relevant to all forms of cancer. The Foundation has three prestigious scientific award programs: the Damon Runyon Postdoctoral Fellowship, the Damon Runyon Scholar Award (for junior faculty conducting primarily basic research) and the Damon Runyon Clinical Investigator Award (for junior faculty engaged in translational research). In 2005, the Foundation will invest nearly $12 million in approximately 175 of the best young scientists working at more than 50 of the leading institutions and cancer centers around the country.

Donaghue Foundation
www.donaghue.org
Donaghue FoundationThe Patrick and Catherine Weldon Donaghue Medical Research Foundation provides grants for medical research of practical benefit. The Foundation supports work in a wide range of disciplines aimed at improving mental and physical health, advancing clinical interventions and the delivery of health services, and improving community and public health. The Foundation is particularly interested in funding research that has the potential for direct, near-term impact to improve health and in supporting initiatives designed to promote the transfer of knowledge to useful applications. Most of the Foundation's grants are made to Connecticut institutions. The Donaghue Foundation was established in 1991 by the will of Ethel Donaghue in memory of her parents.

Doris Duke Charitable Foundation
www.ddcf.org/mrp
Doris Duke Charitable FoundationEstablished in 1996, the Doris Duke Charitable Foundation's four grant making programs support the mission of the Doris Duke Charitable Foundation: To improve the quality of people's lives through grants supporting the performing arts, wildlife conservation, medical research, and the prevention of child maltreatment, and through preservation of the cultural and environmental legacy of Doris Duke's properties.

One of these grant making programs, the Medical Research Program, funds a number of competitive grant programs that are focused on strengthening and supporting clinical research to help advance the translation of basic biomedical discoveries into new treatments, preventions and cures for human diseases. As of July 2006, the Medical Research Program has approved approximately 215 grants and programs and has committed approximately $150 million.

Flinn Foundation
www.flinn.org
Flinn FoundationThe Flinn Foundation is a private philanthropic trust that was created in 1965 by Dr. and Mrs. Robert S. Flinn to improve the quality of life in Arizona. The Phoenix-based Foundation supports the advancement of the biosciences in Arizona, as well as a major college scholarship program at Arizona's universities and an initiative to position arts and culture as a component of Arizona's knowledge-based economy.

Fondation Leducq
www.fondationleducq.org
Fondation LeducqFondation Leducq, based in Paris, France, is dedicated to improving human health through international efforts to combat cardiovascular disease. With a Scientific Advisory Committee made up of leading medical experts from Europe and North America, the foundation has made collaborative research in cardiovascular and neurovascular disease the focus of its grant program, the Transatlantic Networks of Excellence. With this program the Leducq Foundation supports teams of scientists, comprised of European and North American investigators, who work together to solve some of the most difficult problems in cardiovascular research. It is hoped that through their joint efforts we will advance our knowledge of, and ability to treat, one of the leading causes of death and disability in the industrialized as well as the developing world.

Food Allergy & Anaphylaxis Network
www.foodallergy.org
Food Allergy & Anaphylaxis NetworkThe Food Allergy & Anaphylaxis Network (FAAN) was founded in 1991 by Anne Muñoz-Furlong. Muñoz-Furlong established the organization because of the lack of information available when her own daughter was diagnosed with milk and egg allergy as an infant.

FAAN is the world's largest non-profit organization providing information about food allergy to media, schools, health professionals, pharmaceutical companies, food industry, government officials, and to the food-allergic community. FAAN's mission is to raise public awareness, to provide advocacy and education, and to advance research on behalf of all those affected by food allergies and anaphylaxis.

FAAN has close to 30,000 members in the United States, Canada, and 63 other countries. Members include people who have food allergy, parents of children who have food allergies, school officials, and medical and food industry professionals.

FAAN has a 14-member Medical Advisory Board who are medical and scientific experts in food allergy.

Foundation Fighting Blindness
www.FightBlindness.org
Foundation Fighting BlindnessThe urgent mission of The Foundation Fighting Blindness is to drive research that will provide preventions, treatments, and cures for people affected by retinitis pigmentosa, macular degeneration, Usher syndrome, and the entire spectrum of retinal degenerative diseases.

Since its establishment in 1971, The Foundation has raised more than $200 million to fund thousands of studies at hundreds of prominent institutions. FFB is ranked as a "Top-Rated" charity by the American Institute of Philanthropy, and was named one of Worth Magazine's "100 Best Charities."

FFB-funded scientists perform research in a variety of areas including: genetic discovery, gene therapy, cellular biology, nutrition, and retinal prosthetics. The Foundation's Scientific Advisory Board - leaders in retinal disease science and research - provide oversight and guidance for the research program.

FFB established the National Neurovision Research Institute to accelerate the translation of laboratory based research into clinical trials for treatments and cures of retinal degenerative diseases.

The Gerber Foundation
www.gerberfoundation.org
The Gerber FoundationThe Gerber Foundation is an independent, private foundation dedicated to improving the health and nutrition of infants and young children by supporting medical research targeted from pre-birth to 3 years of age. Major categories of focus are general health and chronic disease issues, nutrition, and environmental hazards as they may affect this age group. Within this mandate, the Foundation focuses on translational and clinical research and support for early career development of investigators. The Gerber Foundation awards approximately $3.5 million in grants annually to institutions within the United States.

Howard Hughes Medical Institute
www.hhmi.org
Howard Hughes Medical InstituteThe Howard Hughes Medical Institute, founded in 1953 by aviator-industrialist Howard R. Hughes, is a medical research organization dedicated to biomedical research and education. Its principal objectives are the advancement of fundamental knowledge in the biomedical sciences and the application of that knowledge to alleviate disease and promote health. HHMI employs scientists to carry out research across a broad array of subjects affecting human health, with laboratories located throughout the United States at academic medical centers, universities, and other scientific institutions under long-term research collaboration agreements. Through its grants and special programs, HHMI seeks to strengthen science education and biomedical research by supporting current and future leaders to advance scientific knowledge, develop educational products, and implement outstanding educational practices. Scheduled to open in 2006, HHMI's Janelia Farm Research Campus in Loudoun County, Virginia, will house small research groups that will explore fundamental biomedical questions in a highly collaborative, interdisciplinary culture.

Hydrocephalus Association
www.hydroassoc.org
Hydrocephalus AssociationThe Hydrocephalus Association (HA) is working to eliminate the challenges of hydrocephalus and improve the lives of over one million people and families living with this condition. With a national network of over 30 community partners the HA provides support, education, and advocacy to thousands of families each month, and is aggressively executing a new research agenda aimed at improving lives and seeking ways to prevent and/or cure hydrocephalus.

Juvenile Diabetes Research Foundation International
www.jdrf.org
Juvenile Diabetes Research Foundation InternationalJDRF is the leading charitable funder and advocate of type 1 (juvenile) diabetes research worldwide. The mission of JDRF is to find a cure for diabetes and its complications through the support of research. Type 1 diabetes is a disease that strikes children suddenly and requires multiple injections of insulin daily or a continuous infusion of insulin through a pump. Insulin, however, is not a cure for diabetes, nor does it prevent its eventual and devastating complications, which may include kidney failure, blindness, heart disease, stroke, and amputation. Since its founding in 1970 by parents of children with juvenile diabetes, JDRF has awarded more than $800 million to diabetes research, including more than $86 million in FY2004. In FY2004, the Foundation funded 500 centers, grants and fellowships in 20 countries.

W. M. Keck Foundation
www.wmkeck.org
W. M. Keck FoundationThe W.M. Keck Foundation was established in 1954 in Los Angeles by William Myron Keck, founder of The Superior Oil Company. Following the ideals of its founder, the Keck Foundation's objective is to support outstanding science, engineering and medical research, undergraduate education, and, in Southern California, community service projects that will have a significant impact in solving complex issues and problems. In the area of biomedical research, the Keck Foundation funds basic research projects proposed by leading researchers and the establishment of unique laboratories and research centers at universities and research institutes. The Foundation also supports early stage biomedical science investigators through its Young Scholars Program. In its Southern California Program the Foundation places special emphasis on children, youth and their families, with the goal of providing safe, healthy, supportive environments. Through this program the Keck Foundation funds health care projects and programs in southern California hospitals and clinics.

Susan G. Komen for the Cure®
www.komen.org
Susan G. Komen for the CureNancy G. Brinker promised her dying sister, Susan G. Komen, that she would do everything in her power to end breast cancer forever. In 1982, that promise became Susan G. Komen for the Cure® and launched the global breast cancer movement. Today, Komen for the Cure is the world's largest grassroots network of breast cancer survivors and activists fighting to save lives, empower people, ensure quality care for all and energize science to find the cures. Thanks to events like the Komen Race for the Cure, we have invested $1 billion to fulfill our promise, becoming the largest source of nonprofit funds dedicated to the fight against breast cancer in the world. For more information about Susan G. Komen for the Cure, breast health or breast cancer, visit www.komen.org or call 1-877 GO KOMEN.

The Leukemia & Lymphoma Society
www.lls.org
The Leukemia & Lymphoma SocietyThe Leukemia & Lymphoma Society is the world's largest voluntary health organization dedicated to funding blood cancer research, education and patient services. The Society's mission: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families. Since its founding in 1949, the Society has invested more than $550.8 million for research specifically targeting blood cancers.

The Society's Home Office is based in White Plains, NY. Some Home Office staff are also based at three regional offices in Alexandria, Cincinnati and Phoenix. To learn more about us, use our Chapter Finder to find the Society chapter in your area or contact us at www.lls.org.

Lupus Foundation of America, Inc.
www.lupus.org
The Lupus Foundation of AmericaThe Lupus Foundation of America, Inc. (LFA) is the nation's foremost national nonprofit voluntary health organization dedicated to finding the causes of and cure for lupus and providing support and services to all people affected by the disease. The LFA manages comprehensive programs of lupus research, education, patient services, and advocacy through a national network of nearly 300 chapters, affiliates, and support groups.

Lymphoma Research Foundation
www.lymphoma.org
Lymphoma Research FoundationThe Lymphoma Research Foundation (LRF) is the nation's largest lymphoma-focused voluntary health organization devoted exclusively to funding lymphoma research and providing patients and healthcare professionals with critical information on the disease. LRF's mission is to eradicate lymphoma and serve those touched by the disease.

March of Dimes
www.marchofdimes.com
March of DimesThe March of Dimes is a national voluntary health agency with chapters in all 50 states, the District of Columbia, and Puerto Rico. Its mission is to improve the health of babies by preventing birth defects and infant mortality. The March of Dimes accomplishes this with its programs of research, community services, education, and advocacy. The organization was established in 1938 by President Franklin D. Roosevelt to lead research efforts on polio, leading to the development of the Salk and Sabin vaccines. This unique collaboration of citizens and scientific researchers was the nation's first large-scale biomedical initiative led by a charitable organization. Over the years, March of Dimes initiatives have helped spare many babies from death or lifelong disability. In 2003, the March of Dimes launched a multi-year campaign to address the increasing rate of premature birth in the United States.

The Medical Foundation
a division of Health Resources in Action
www.hria.org
The Medical FoundationThe Medical Foundation division works with private individuals, bank trusts, and corporate and family foundations to design customized grant programs that accelerate medical discoveries. Each year, more than 100 internationally recognized investigators and physician scientists from across the United States and Europe serve on our Scientific Review Committees. Reviewers provide critical and unbiased evaluations of all applications and research progress reports. The Medical Foundation's clients fund more than 125 investigators in basic biomedical, translational and clinical research and award close to $19 million annually. Health Resources in Action (HRiA), the parent organization of The Medical Foundation division, is a nonprofit public health and research organization dedicated to promoting individual and community health through prevention, health promotion, and policy.

MPD Foundation
www.mpdfoundation.org
The Medical FoundationThe MPD Foundation is a patient run organization whose primary mission is to stimulate and finance meaningful research in pursuit of new treatments and eventually a cure for the Philadelphia chromosome negative Myeloproliferative Disorders. The foundation values innovative and collaborative scientific investigation. In addition, the MPD Foundation serves as a resource to patients and their families to help them understand this relatively rare disorder, providing information about drug development, clinical trials and patient support activities.

The Philadelphia chromosome negative MPD's include Polycythemia Vera, Essential Thrombocythemia, and primary myelofibrosis.

The Mt. Sinai Health Care Foundation
www.mtsinaifoundation.org
The Mt. Sinai Health Care FoundationFormed as a result of the 1996 sale of Cleveland's Mt. Sinai Medical Center and related hospitals, The Mt. Sinai Health Care Foundation is an independent grantmaker affiliated with the Jewish Community of Cleveland. The Foundation's purpose is to assist Greater Cleveland's organizations and leaders improve the health and well-being of the Jewish and general communities now and for generations to come. Among its strategic grantmaking objectives is to advance academic medicine and bioscience, to both expand the bioscience sector of the regional economy and further Cleveland's prominence in this area. The Foundation's assets at December 31, 2008, exceeded $160 million.

Multiple Myeloma Research Foundation (MMRF)
www.themmrf.org
Multiple Myeloma Research Foundation (MMRF)The Multiple Myeloma Research Foundation (MMRF) was founded by twin sisters Karen Andrews and Kathy Giusti, soon after Kathy was diagnosed with multiple myeloma. The mission of the MMRF is to relentlessly pursue innovative means that accelerate the development of next-generation multiple myeloma treatments to extend the lives of patients and lead to a cure.

As the world's number-one private funder of multiple myeloma research, the MMRF has raised over $120 million since its inception to fund more than 90 laboratories worldwide. An outstanding 93% of funds are directed toward research and related programming.

The MMRF is currently supporting 40 new compounds and approaches in clinical trials and pre-clinical studies and has initiated 19 clinical trials through its research consortium, the Multiple Myeloma Research Consortium (MMRC).

Muscular Dystrophy Association
www.mda.org
Muscular Dystrophy AssociationTThe Muscular Dystrophy Association is a voluntary health agency - a dedicated partnership between scientists and concerned citizens aimed at conquering neuromuscular diseases that affect more than a million Americans. MDA combats neuromuscular diseases through programs of worldwide research, comprehensive medical and community services, and far-reaching professional and public health education. With national headquarters in Tucson, MDA has more than 200 offices across the country, sponsors 230 hospital-affiliated clinics and supports nearly 400 research projects around the world.

Myelin Repair Foundation
www.myelinrepair.org
Myelin Repair FoundationThe Myelin Repair Foundation (MRF) funds and manages a comprehensive collaboration of scientific investigators and research partners dedicated to accelerating the identification, validation and licensing of myelin repair drug targets for clinical trials that will lead to treatments for MS. To accomplish this goal, the Foundation has developed a unique outcome-directed business/science model for medical research and the translation of discoveries that is cutting the time to deliver patient treatments by as much as 50%. Many believe MRF's model could change the way in which all medical research is done. Because of the outcome-directed nature of MRF's research program, new participants are considered by invitation only.

Pancreatic Cancer Action Network
www.pancan.org
Pancreatic Cancer Action NetworkThe Pancreatic Cancer Action Network is a nationwide network of people dedicated to working together to advance research, support patients and create hope for those affected by pancreatic cancer.

The organization raises money for direct private funding of research—and advocates for more aggressive federal research funding of medical breakthroughs in prevention, diagnosis and treatment of pancreatic cancer. The Pancreatic Cancer Action Network fills the void of information and options by giving patients and caregivers reliable, personalized information they need to make informed decisions. The organization helps support individuals and communities all across the country work together to raise awareness and funds to find a cure for pancreatic cancer.

Parent Project Muscular Dystrophy
www.parentprojectmd.org
Pancreatic Cancer Action NetworkParent Project Muscular Dystrophy (PPMD) is the largest nonprofit organization in the US focused entirely on Duchenne muscular dystrophy.

Since 1994, PPMD has improved the treatment, quality of life, and long-term outlook for all individuals affected by Duchenne through research, advocacy, education, and compassion. Because of our efforts, families affected by Duchenne have better access to care information, research is moving forward, and legislation now exists funding Duchenne programs.

Parent Project Muscular Dystrophy is recognized around the world as the leader in the Duchenne community. We hold the highest ethical standards and consistently receive high marks from watchdog organizations.

We take a comprehensive approach in the fight against Duchenne-funding research, raising awareness, promoting advocacy, connecting the community, and broadening treatment options. Only this comprehensive approach will lead to the day that 100% of those diagnosed can turn to a treatment that will end Duchenne muscular dystrophy.

Prevent Cancer Foundation
www.preventcancer.org
Prevent Cancer FoundationA national, non-profit health care organization founded by Carolyn Aldige in 1985 in memory of her father, the Foundation's mission is the prevention and early detection of cancer through scientific research, education and community outreach. (The Foundation was known as the Cancer Research and Prevention Foundation until 2007.)

The Foundation focuses its energies and resources on those cancers - including lung, breast, prostate, colorectal, cervical, skin, oral and testicular - that can be prevented through lifestyle changes or early detection and treatment. Since its inception, the Foundation has provided more than $95 million in support of research and education programs.

The Foundation has funded over 250 scientists at more than 150 leading academic institutions across the country, and its public education programs have applied scientific knowledge by teaching people ways they can reduce their cancer risks. By explaining the benefits of healthy eating, regular exercise and adherence to screening recommendations, the Foundation has shown men, women and children how to protect themselves against cancer.

Simons Foundation
Simons Foundation www.simonsfoundation.org
www.sfari.org
The mission of the Simons Foundation is to advance the frontiers of research in the basic sciences and mathematics.

In the life sciences, institutional and targeted grants support research in systems biology, human evolution and math in biology. The Simons Foundation Autism Research Initiative (SFARI) seeks to understand the causes of autism and thereby improve the diagnosis, treatment, and prevention of this and related developmental disorders. SFARI applications are solicited from individuals who will conduct bold, imaginative, rigorous research relevant to this spectrum of prevalent disorders.

The Foundation supports the work of institutions and organizations that give many of the world's best mathematicians and physicists the opportunity to work and interact in environments designed to enhance progress. Part of our mission is also to train students and educators in these disciplines, and to organize programs that introduce the wonders of these fields to children and to the general public.

Sjögren's Syndrome Foundation
www.sjogrens.org
Sjogren's Syndrome FoundationThe Sjögren's Syndrome Foundation (SSF) promotes greater awareness, improved treatments and a cure for the four million Americans and many more worldwide who suffer from Sjögren's syndrome, a serious autoimmune disease. We recognize that medical and scientific research brings hope for a better future.

A public not-for-profit organization, the Foundation serves patients and the many people who support and treat them. Our Research Program promotes basic science and clinical investigations into the cause, prevention, diagnosis, treatment, and ultimately a cure for this prevalent autoimmune disease. We encourage and support research into Sjögren's syndrome by offering annual research grants and student fellowships, recognizing exceptional young investigators through outstanding abstract awards, initiating scientific meetings and workshops, and partnering with patient advocacy groups, foundations, and federal health agencies to increase awareness of the need for research in Sjögren's syndrome.