Data Sharing Subgroup of the Open Science Task Force

Chaired by:

Salvatore La Rosa, PhD, Vice President, Research & Development, Children’s Tumor Foundation

Heather Snyder, Alzheimer’s Association
Liz Jackson, St. Baldrick’s Foundation
Kristen Mueller, Melanoma Research Alliance
Erik Nelson, Leukemia and Lymphoma Society
Emily White, Focused Ultrasound Foundation

The HRA member data sharing policies that Heather McCartney, HRA’s Data Sharing Intern, has collected can be found here.

To submit your data sharing policies email Heather McCartney, HRA’s Data Sharing Intern

Access the report funded by Robert Wood Johnson Foundation entitled “Funder Data-sharing Policies: Overview and Recommendations” 

Two Data Sharing webinars hosted by HRA:

1. Data Sharing Webinar #1 (7/11/17): Intro to Data Sharing

This 1 hour webinar introduced participants to the various types of data and data sharing platforms currently available.   Recording of the webinar is available here, slides from our presenters can be found by clicking on the presenter names.
 Meghan Byrne, PhD, Senior Editor, PLOS ONE
 Andrew L. Hufton, PhD, Managing Editor, Scientific Data, Nature Research

Abbreviated List of resources (from Data Sharing Webinar 1 Summary)

From PLOS:

 From Nature and the Nature Research journals:  

2. Data Sharing Webinar #2 (8/10/17):  Intro to sharing Big Data

The recording of the second in the data sharing series is available here, slides from our presenters can be found by clicking on the presenter names.
Ben Busby, PhD, Genomics Outreach Coordinator, NCBI
Adam Resnick, PhD, Director of Children’s Brain Tumor Tissue Consortium, CHOP


Big Data Sharing Meeting – September 19, 2017

Meeting Agenda

Speaker Bios

Data Commons Guidelines for Funding Organizations prepared by Bob Grossman.

Meeting mission statement / objectives

  1. To reinforce funders’ desire to encourage data sharing and provide resources to facilitate data sharing policies.
  2. To provide clarity with respect to the vocabulary, the concepts, and the benefits of data sharing.
  3. To educate funders about options currently available for sharing large research datasets and understand what it takes to implement and enforce data sharing within your organization.
  4. To provide a forum at which funders can discuss the gaps in data sharing platforms, and what is philanthropy’s role in filling those gaps. Could jointly sponsoring platforms for data sharing (for example data Commons that are shared and funded by multiple HRA members) meet unmet needs in data sharing infrastructure?