Registry and Biorepository December Community Call

12/07/2023 2-3PM ET - Webinars

In the December Registry and Biorepository community call, we’ll share details from two programs on prioritizing research questions and use cases of Registry data. IBD Plexus will talk about their process of aligning programmatic support with the research questions they hope to solve. The PKD Foundation will share details of a recent Data Prioritization Workshop where they identified top research questions for their disease space and highlighted where their data may partially or fully answer them. We will then close out the year with a discussion of 2024 meeting topic planning.


*HRA is committed to providing a friendly, safe, and welcoming environment for all, regardless of race, national origin, gender, gender identity, sexual orientation, disability, ethnicity, or religion. When registering, you will be prompted to let us know if there are accommodations we can provide to maintain an inclusive and accessible environment.