Registry and Biorepository Working Group

Working Group Description

Registries and biorepositories bring significant value and benefits to the community they are serving. However, there are abundant challenges with available technology platforms, recruitment, data types, standardization, governance (access and sharing), and of course, cost/sustainability. Given building and maintaining registries and biorepositories are large endeavors, HRA recently launched the Registry and Biorepository Working Group which will focus on learning from each other and outside experts to best position your organization to have an impactful and sustainable registry and biorepository.

Co-Chairs

In 2020, the Registry and Biorepository Working Group is being chaired by: