The Fibrolamellar Cancer Foundation (FCF) is the leading nonprofit funder of fibrolamellar carcinoma (FLC) research www.fibrofoundation.org. FLC is an extremely aggressive, ultra-rare adolescent/young adult (AYA) liver cancer typically affecting healthy 12-34 year olds, with a very low five year survival rate.
The foundation was founded in 2009 by 27 year old patient Tucker Davis, who lost an 18 month battle with this cancer. The Foundation’s mission is to a) support research towards a cure b) build awareness for the disease c) connect and help build a research-focused patient community
To-date, over +$12 million in research funding has been committed by the FCF across more than 25 institutions in the USA and abroad. FCF is the first cancer to be accepted into the Chan Zuckerberg Initiative (CZI)’s inaugural Rare As One program.
FCF’s leadership has been founding chair of the NORD Rare Cancer Coalition and the GI Cancer Alliance and works closely with the NCI, CRI, DOD, FDA amongst other key organizations.