Resources

Open Science and Registry/Biorepository Joint Community Meeting: Financial Program Sustainability in the Age of Open Science [September 17, 2025]

As the demand for data sharing and transparency continues to grow, programs that manage registries and biorepositories face increasing pressure to operate within the principles of open science while also ensuring their long-term financial and operational stability. This joint community meeting brought together leaders from across the nonprofit and research ecosystem to explore how organizations are adapting their sustainability models in response to changing expectations around access, funding, and collaboration. This panel discussion included representatives from the Crohn’s and Colitis Foundation, Susan G. Komen, and the Center for Open Science.