Resources for Members

Listserv Responses: Diverse recruitment for registry or natural history study [July 2021]

Listserv Summary

Hi all, DTRF is trying to increase the diversity within our natural history study. I’m interested if anyone has any ideas on improving diversity in an NHS or if anyone has had successful campaigns to do so. Would love all perspectives, but particularly interested if it’s been in a rare…

Listserv Responses: Program Evaluation Indicators [July 2021]

Listserv Summary

Dear HRA members, We recently completed an evaluation of a program supporting innovations in a specific disease area, sickle cell disease. However, we are having trouble finding comparisons against which to benchmark our portfolio’s outcomes such as follow on funding, number of publications, and return on our dollars. Have you…

Impact of Communications [Webinar – 9/17/2021]


Staying ahead of the game: Strategic and proactive communications Mark Dessauer, VP of Learning, Spitfire Strategies Communications is ever present in most organizations.  No matter what the mission, communications are the means to accomplish it – internally and externally.  Having a successful communications plan and position takes more than the…

DOIs for Grants – the Whys and the Hows


Several HRA members (as well as other funders) are now assigning DOIs (Digital Object Identifiers) to grants. In this webinar our speakers showed why they have put in the effort to do this, and the benefits this brings to their workflows.  Also, Crossref representatives addressed about next steps, workflows and…

HRA COVID-19 Impact Survey Presentation


In March, HRA hired evaluators to conduct a broad landscape analysis on the impact the pandemic had on HRA member organizations. In advance of the release of the report, the evaluators will be presenting the results of the COVID-19 Impact Survey to HRA members. The presentation will include not only…

Research Ethics Review Board


The Registry and Biorepository Working Group hosted a presentation by Dr. Stephen Rosenfeld on a new model of ethical review. The “Research Ethics Review Board” is a system of nonprofit, independent, Institutional Review Boards (IRBs). Research requires public trust in the scientific enterprise. Such trust is necessary both to support…

Registry and Biorepository Working Group for a presentation by Dr. Stephen Rosenfeld on a new model of ethical review


The Registry and Biorepository Working Group hosted a presentation by Dr. Stephen Rosenfeld on a new model of ethical review. The “Research Ethics Review Board” is a system of nonprofit, independent, Institutional Review Boards (IRBs). Research requires public trust in the scientific enterprise. Such trust is necessary both to support…

2021 DRAFT Strategic Plan


I am pleased to share with you the most up-to-date strategic plan document.  Thank you to HRA’s Strategic Planning Committee for their significant efforts in bringing us to this point.  We are looking to you, HRA Members, to review and share your comments about the plan before the final adoption by our Board. We encourage HRA…

Holistic Review by Amy Addams webinar [July 14, 2021]

Document | Webinar

The DEI working group hosted a session on Holistic Review by Amy Addams, Director of Student Affairs Alignment and Holistic Review at Association of American Medical Colleges (AAMC.)  Her slide deck and discussion guide can be found above.  

Diversity, Equity and Inclusion (DEI) Working Group call [May 12, 2021]

Document | Webinar

The May meeting of the DEI working group agenda: Book Reading Selection (10 min) Two versions available for “Presumed Incompetent” book reading for the June call (see next page). II. Holistic Review Introduction (10 min)  Concept introduction  Discussion and questions. What do you want to learn from an AAMC Holistic…

NASEM report on The Impact of COVID-19 on the Careers of Women [Webinar, April 28, 2021]

Document | Webinar

This Zoom call hosted by the Research Workforce and Early Career Development Working Group welcomed guest speaker Dr. Reshma Jagsi, the Newman Family Professor and Deputy Chair in the Department of Radiation Oncology and Director of the Center for Bioethics and Social Sciences in Medicine at the University of Michigan…

Building stronger drug and other therapy development innovation ecosystems – A Case Study [Webinar March 9, 2021]

Document | Meeting | Webinar

The Flinn Foundation launched the bioscience Entrepreneurship Program in 2014 to foster entrepreneurship and help bioscience founders/CEOs develop their early-stage companies into successful and sustainable businesses bringing new therapies, medical devices, and medical technologies to the market . 8 years on, with over 40 investments in companies such as GT…

Data Sharing and Data Management Plans [HRA Members Meeting, Virtual, Spring 2021]


Per a recent survey to HRA membership, several organizations have a data-sharing/management policy in place or are considering developing one. This session will highlight the experiences of a few organizations currently implementing these policies. We will hear about specific aspects of their policies and implementation practices including: definition of a…

The Future Workplace: Post-pandemic Workforce and the Disruption in the Workplace; Remote, In-person, and Hybrid Models [HRA Members Meeting, Virtual, Spring 2021]


For many organizations, the 2020 COVID pandemic forced a shift in workplace operations from in-person, to fully remote, or to a hybrid model. Many offices will not be able to open and operate at full capacity for a long time. At the same time, some people don’t want to go…

Fostering Diversity, Equity, and Inclusiveness Within the Research Workforce [HRA Members Meeting, Virtual, Spring 2021]


The session will focus on racial disparities and opportunities to foster and support diversity, equity, and inclusiveness within the research workforce, specifically at the postdoc and early career faculty level. Candidates from underrepresented backgrounds may lack the social structures and networks to sustain career development in research, so the role…

NASEM Toolkit for Fostering Open Science Practices [HRA Members Meeting, Virtual, Spring 2021]


This session will focus on informing HRA members about the National Academies of Sciences, Engineering, and Medicine (NASEM) Roundtable on Aligning Incentives for Open Science and what funders can do to promote and incentivize open science practices. Some concepts that are addressed by the toolkit include: ·   Open access of…

Hosting Virtual Events [HRA Members Meeting, Virtual, Spring 2021]


As we all have experienced, 2020 was the year of hosting virtual events. Have you spent hours researching the how-to’s of managing virtual meetings? This session will discuss the nuts and bolts of organizing and facilitating online events and will showcase studies of best practices in hosting your event. Dr….

Diversity, Equity and Inclusion (DEI) Working Group call [March 10, 2021]

Document | Webinar

The Diversity, Equity, and Inclusion Working Group presented a discussion with the authors: “Fund Black Scientists” (Published in Cell, Feb 2021) Moderated by: Kelly Chavez Rose, PhD Program Officer, Burroughs Wellcome Fund, DEI Working Group Co-chair Speakers: Kelly R. Stevens, PhD Assistant Professor, Bioengineering and Pathology Depts, University of Washington Hana El-Samad,…

How to Return to the Workplace Safely (from


The current COVID-19 pandemic is uncharted territory for all of us. Currently, many employees are working from home but many others are beginning to return to their workplace at the request of their employers. This can be a stressful situation for all involved. A team from has published a…

Federal Policy for Data Sharing Webinar [February 23, 2021]

Document | Webinar

Attendees heard the details of the NIH Policy for Data Management and Sharing from Dr. Lyric Jorgenson, Deputy Director, Office of Science Policy at the NIH.  Then  Dr. Naba Bora, Biomedical Research Program Manager at the Office of Congressionally Directed Medical Research Programs spoke about the CDMRP policy and how…

Diversity, Equity and Inclusion (DEI) Working Group call [December 16, 2020]

Document | Webinar

The December meeting of the DEI working group agenda: I. Welcome and co-chair Introduction Patricia Frustace – Working Group Co-Chair Senior Director of Awards and Diversity American Society for Hematology II. Mission Statement and Goals Kelly Chavez Rose – Working Group Co-Chair Program Officer Burroughs Wellcome Fund III. Overview of…

A Consumers Guide to Grants Management Systems (2020 Edition)


A Consumers Guide to Grants Management Systems (2020 Edition) This fifth edition reviews 14 of the most widely used grants management systems against hundreds of requirements criteria developed with the expertise of consultants, vendors, foundation program officers, and system administrators. For the first time, the guide also includes an interactive…

Gene Editing Workshop: (FDA New Frontiers in Science Distinguished Lectureship Program)


In November 2016, HRA sponsored a workshop at the FDA entitled “Gene Editing: FDA-Regulated Technologies and Applications.”  The keynote speaker was  Jennifer Doudna and her talk was titled “CRISPR-Cas Genome Engineering: Biology, Technology and Ethics.” Four short years later, Dr. Doudna and her collaborator, Dr. Emmanuelle Charpentier, received the 2020…

Post COVID-19 Recommendations for Early Career Research Support Mechanisms


During the Fall Members Meeting, Dr. Erin Gibson listed many recommendations for funders to provide financial and nonfinancial support for their early career researchers to mitigate the effects of COVID-19 on their research and their careers.  Those recommendations as well as others suggested in the Cell Commentary “How Support of…

Bias in Peer Review [Webinar, October 6, 2020]

Document | Webinar

On Tuesday, October 6th, 2020, the HRA Grants Administration Working Group hosted a Zoom webinar around bias in peer review and potential interventions for bias reduction. With diversity and equity being at the forefront of national discussion, ensuring a fair and equitable peer review process is more important and timely…

Open Mic: Innovation in Philanthropy [HRA Members Meeting, Virtual, Fall 2020]


Recent events have forced member organizations to examine the gaps in the current biomedical research system – exposing areas of weakness, while also highlighting areas of immense opportunity. This ‘open mic’ session will explore innovative concepts and actions have the potential to revolutionize all aspects of the work of funders…

Resiliency and Sustainability: Exploring Best Practices in Development and Fundraising [HRA Members Meeting, Virtual, Fall 2020]


For the first time, the members’ meeting planning committee is organizing a session dedicated exclusively to development and fundraising. In this interactive session, we will discuss best practices and proven strategies for fundraising and navigating through challenging periods. The panel will address questions like: • What kinds of strategies can…

Balancing Stakeholder Expectations [HRA Members Meeting, Virtual, Fall 2020]


This session will discuss successful strategies used within an organization’s governance structure to manage expectations of key stakeholders, specifically donors and foundation leadership. Using presentations of case studies from member organizations, we will learn strategies and processes employed to ensure stakeholder satisfaction while retaining mission alignment and integrity of the…

Opportunities to Achieve Diversity and Inclusion in Biomedical Research [HRA Members Meeting, Virtual, Fall 2020]


Dr. Hannah Valantine, NIH’s first Chief Officer for Scientific Workforce Diversity, will present NIH’s plans to support scientific workforce diversity and inclusion efforts in the face of COVID-19. NIH’s plans include supporting inclusive excellence, which features messages about cognitive bias and institutional culture change. Dr. Valantine will discuss a number…

How are funders best supporting the biomedical enterprise by their response to the COVID-19 crisis? [HRA Members Meeting, Virtual, Fall 2020]


This unprecedented and continuously evolving COVID-19 pandemic has caused turbulence in the lives of the global public. Organizations worldwide are doing their best to learn and understand the impact of this novel coronavirus in order to adequately respond to this crisis and become better positioned for subsequent threats. In this…

Using Social Media to Advance Your Mission [HRA Members Meeting, Virtual, Fall 2020]


Social media can be an important tool for nonprofits to build strong communities online and further their reach. Are you using your social media channels effectively? In this session, we will discuss how to integrate social media into your communication strategy to expand your Mission work. Join our panelists as…

Grants Program Analysis Working Group [Call, September 15, 2020]


The Grants Program Analysis Working Group recently held its bimonthly call to discuss the status of current projects and upcoming goals. The document above gives a recap of what was discussed, if you need a login to access the summary please email Annette.

Diversity, Equity and Inclusion (DEI) Working Group call [September 10, 2020]

Document | Webinar

Sharing DEI challenges and progress among HRA Members The September meeting of the DEI working group focused on increasing Diversity, Equity and Inclusion in our grant portfolios.  Discussion topics: Do you prioritize DEI in your grantee portfolio and if so why? What is the racial/ethnic representation of your applicants and…

HRA COVID Assessment Survey Questions


In response to the COVID-19 pandemic, many organizations assessed the status/needs of their awardees in various ways (online surveys, focus groups, etc.) The Research Workforce and Early Career Development Working Group compiled a list of questions that members asked awardees or other researchers. These questions can be used by funders…

Registry and Biorepository Working Group August 26, 2020 meeting

Document | Meeting

Agenda items covered during the August meeting of the Working Group: Snapshot of Registry and Biorepository Status and Capabilities Survey Results Business Plan Development Purpose and Role of Business Plan Components of Business Plan Operational Structure and Governance Model Examples and Discussion Focus on Governance and Data Sharing Components of…

Early COVID Financial Impact Survey


In June, the Crohn’s & Colitis Foundation led an effort (with the help of the Children’s Tumor Foundation and the Doris Duke Charitable Foundation) to identify ways to help raise awareness about the short- and long-term impacts of reductions in funding from non-profit grant funders.  The C&CF staff developed a…

Registry and Biorepository Working Group Kickoff meeting


The cochairs presented the results of a precall survey to gauge topic interest and get a sense of where HRA members are with respect to registries and biorepositories. The powerpoint presents those data including interest in learning more about business development, recruitment/retention and more.  Many attendees on the call and…

Patient Registries: The Good, the Bad and the Opportunities [HRA Members Meeting, Fall 2019]

Document | Meeting

Breakout Session: A Natural History of HRA & Patient Registries Informed by member and non-member experiences, challenges, questions, and accomplishments, this session will present and discuss organizations’ patient registries efforts. Challenges abound in available technology platforms, recruitment, data types, standardization, access and sharing, and of course, cost. Yet survey respondents…

Building Back Better: Re-envisioning the biomedical research ecosystem [Town hall webinar, July 22 2020]


In an effort to capitalize on the unanticipated disruption of the “normal” way of doing science, HRA invites you to think creatively about how things could be different during a town hall meeting entitled “Building Back Better: Re-envisioning the biomedical research ecosystem.”  Think about the questions below and come prepared…

Open Science Resources


This document lists resources created by HRA and others to help (1) understand the benefits of open science policies, (2) craft open science policies that are appropriate for your specific organization, and (3) implement that policy with as little added work for staff and awardees as possible. If you see…

ORFG Preprints Primer


The Open Research Funders Group (ORFG) has developed a Preprints Primer for the American Heart Association.  Feel free to use this guidance in setting your own policy around the use of preprints.

Aligning incentives for open science


The “Sending Signals” subgroup of the NASEM’s Roundtable on Aligning Incentives for Open Science developed language that funders and universities are beginning to use to send a clear signal to researchers that we value their “open” behavior. Open behavior includes (but is not limited to) publishing in Open Access journals,…

Diversity, Equity and Inclusion (DEI) Working Group call [July 9, 2020]

Document | Webinar

Dear colleagues, In recognizing the clear interest of HRA members on effective Diversity, Equity and Inclusion (DEI) work within their mission, we are excited to share about the launch of a new working group that we have agreed to co-chair. Our thanks to Annette and Maryrose for creating a home…

National Institute on Minority Health & Health Disparities Director’s Update


Eliseo J. Pérez-Stable, MD, Director of the National Institute on Minority Health and Health Disparities (NIMHD), gave an update to the AAMC community on key NIMHD issues for the extramural research and research training community. Dr. Pérez-Stable addressed: Current funding opportunities targeting inequities related to COVID-19 and minority health and…

HRA Member Diversity Program Inventory


Many HRA Member organizations’ portfolios include programs and efforts to increase diversity in the sciences.  This spreadsheet is intended as an inventory of those efforts, as well as efforts from nonmember funders. This list should help us learn from each other’s experiences. If you have information that is not included,…

Registered Reports: From the Funders’ and Publisher’s Perspectives [Webinar, March 4, 2020]

Document | Webinar

By conducting peer review prior to data collection, Registered Reports publications emphasize the importance of the research question and the quality of methodology rather than the results of a study. Funders have adopted the Registered Reports format to increase the quality of funded studies to a ‘publication-ready’ peer review journal…

DEI Training

Document | Listserv Summary

We have compiled the responses to a listserv post looking for recommendations for companies or people who do DEI education.  The query specifically did not want an online course,  but rather recommendations for companies which provides in-person (now probably Zoom) training in DEI for staff.

What Can We Do to Combat Anti-Black Racism in the Biomedical Research Enterprise?

NIGMS Feedback Loop Blog – National Institute of General Medical Sciences Article by Dr. Jon Lorsch, Dr. Kenneth Gibbs, and Dr. Alison Gammi

NIH peer review: Criterion scores completely account for racial disparities in overall impact scores [Science Advances, June 2020]

An updated look at the funding gaps between white and black applicants for NIH’s R01 awards.

The context of diversity [Science, November 2019]

Written by Dr. Cato T. Laurencin who is chairing the Academies’ Roundtable on Black Men and Black Women in Science, Engineering, and Medicine.

Topic choice contributes to the lower rate of NIH awards to African-American/black scientists [Sceince Advances, October 2019]

Despite efforts to promote diversity there remains a lower rate of funding of R01 applications submitted by African-American/black scientists relative to white scientists.

COGR Webinar on University Compensation Policies

Document | Webinar

In April the Council on Government Relations (COGR) hosted a webinar title “A Focus on Compensation Polices Amidst the COVID-19 Crisis” to learn from universities about their policies relating to supporting faculty and research.

Transforming to Virtual Scientific Conferences

Document | Listserv Summary

Many HRA members are shifting their scientific conferences to virtual. This document compiles tips, benefits, and lessons learned for those planning to switch conferences or meetings to virtual in the future.  The information comes from HRA members’ posts to the listserv, as well as information from and links to published…

Summary of Select Reopening Guidelines


This summary is in response to a question posted to the listserv asking if members had reopening guidelines.  HRA staff reviewed existing guidelines from the CDC and other places,  and summarized them in the attached document. Some of  the most helpful documents from which guidance was taken are listed below….

AFP Virtual Meeting Case Study 2020


Association of Fundraising Professionals (AFP)annual conference: AFP’s annual meeting, originally scheduled for the end of March, had to quickly transition to a virtual event. Nearly 1000 attendees heard from speakers, engaged with sponsors and exhibitors, and networked with fellow attendees over the same three days of the original in-person conference….

Open Science Landscape [Webinar, April 14, 2020]

Document | Webinar

HRA has consolidated the Open Science Task Force and the Data Sharing Working Group since the group objectives are overlapping. This webinar will be of interest whether your organization would like to get up to speed on basic, current information related to Open Science or already has policies in place….

Introduction to the ORCID US Community Consortium [Webinar, May 13, 2020]

Document | Webinar

HRA members now have the opportunity to join a well-established ORCID consortium led by LYRASIS called the ORCID US Community.  This webinar described the many benefits to belonging to this consortium including help with GMS integration and many valuable community resources that help with logistics, but also help funders convince stakeholders of…

HRA Analyzer Webinar Series

Document | Webinar

This series is designed as an introduction to HRA Analyzer, our members-only online awards database.  If you have never worked with Analyzer before, we strongly encourage you to view the kickoff webinar recording from April 30. 4/30 • Kickoff Webinar This first webinar in the HRA Analyzer series presented an…

COVID-19 Funder Responses


HRA members shared how their organizations are preparing for or responding to COVID-19 via our listserv.  We added that data to a broader set of responses compiled by a team at the Simons Foundation. The resulting spreadsheet has responses for a wide variety of funders.  If you would like your organization added…

COGR’s FAQs and Resources on COVID-19’s Impact to Federal Awards


The Council on Governmental Relations (HRA’s partner in the NFRI initiative) is compiling guidance and actions by specific agencies and offices within the federal government.  You can see agency-specific (e.g. NIH, OMB or NSF) guidance.  You can also view COGR’s Federal Agency Guidance Matrix (Updated) as well as many other…

Running a Successful Virtual Peer Review [Webinar, April 16, 2020]

Document | Webinar

Staff from three HRA member organizations shared their experience running virtual peer reviews from coordinating reviewers and managing conflicts virtually, to fostering productive discussion and making the most various technologies available. Jessica, Jennifer and Andrew also shared best practices to ensure a fair and thorough review as well as tips…

COVID-19 Resources for NIH Applicants & Recipients


NIH is continuing to add new resources to their COVID-19: Information for NIH Applicants and Recipients of NIH Funding webpage. We hope they are helpful in helping you navigate this unprecedented situation.  

Funders of Health Research and Training Respond to Continuing Economic Challenges (May 2009)


In 2009, HRA put together a report in response to the 2008 downturn.  We took a series of actions to collect data and surface activities members were taking to mitigate the situation.  These are listed in the attached report. HRA is again ready to do what we can to help…

Patient Engagement [HRA Members Meeting, Virtual, Spring 2020]


This session focused on the strengthening trend of incorporating the patient voice and values into funded research efforts. Patients are invited to be involved in various steps along the project-funding continuum: from engaging in setting research priorities, evaluating research proposals, participating in the research team, and receiving updates and feedback…

RFA Development and Marketing [HRA Members Meeting, Virtual, Spring 2020]


In this session, we explored best practices for RFA development for new scientific areas, and marketing existing and new RFAs. In particular, speakers discussed how to get input from innovators in a field new to the funder for a new RFA, key elements of a well-written RFA, and novel ideas…

Venture Philanthropy: Untapped Potential or Unintended Consequences? Exploring Venture Capital Approaches in the Philanthropic Space [HRA Members Meeting, Virtual, Spring 2020]


Venture philanthropy does not come without its fair share of controversy. It remains a challenge for nonprofits, philanthropists, patients, start-ups and the general public to determine how – and if – we should combine philanthropy and for-profit strategies, even if the goal is to advance an organization’s mission as quickly…

Using Platform-Based Tools to Measure Impact [HRA Members Meeting, Virtual, Spring 2020]


As grantmakers, we often grapple with how to specifically demonstrate the impact of our research investment. Effectively explaining the return-on-investment from funding research is critical to our mission, as donors become increasingly interested in realizing the importance of their donations. This session explored how platform-based tools can be used to…

Grants Program Analysis Working Group [Call, January 21, 2020]


The Grants Program Analysis Working Group recently held its bimonthly call to discuss the status of current projects and upcoming goals. We had a very productive call, and wanted to take a moment to share with you a brief recap, for your interest (and to encourage you to get involved,…

Beyond Borders: Go International Act Locally/Think Globally

Document | Meeting

Philanthropy is growing and gaining visibility around the world. Increasingly, donors are expanding their portfolios to include local and global giving as strategies to address issues that are important to them. However, making grants to institutions outside the United States is complex.  There are various requirements that funders need to…

Comparison of Platform-based Evaluation software


To access the detailed survey report click the link above. If you have edits to your organization’s info, or if you did not submit any documents and would like to now, please email Annette and we will make edits to this document. This document is for use by HRA members only.  

Grants Management Systems Survey Results


Members often ask HRA which Grants Management System other organizations use.  This page show the data gathered from a survey of the membership in 2019. To access the detailed survey report click the link above. If you have edits to your organization’s info, or if you did not submit any documents…

Discussion of the recent National Academies report on the Science of Effective Mentoring in STEMM [Webinar, December 18, 2019]


This webinar featured a read-out and discussion of the recent National Academies report on the Science of Effective Mentoring in STEMM (PDF above).

Collaboration Workshop [in-person meeting, November 12-13, 2019]


We live in a world of problems so complex that they cannot be effectively addressed by any one organization or even by any one sector. There is a growing understanding among social, private, and public sector leaders that lasting change and the resolution of these systemic issues is going to… How an open access platform to share the methods behind the data can enhance the impact of your grantees’ research and your funding. [Webinar, November 20, 2019]


The open access platform makes it easy to share research recipes and to collaborate on method development, both publicly and privately. This free platform addresses lack of reproducibility due to less than helpful materials and methods sections containing instructions like “we used a modified version of a protocol reported previously” or “contact author for details”….

Fact vs. Fiction [HRA Members Meeting, Fall 2019]


Public opinion shapes attitudes about science, research funding, and health policy. In a crowded media environment where objectivity and trust cannot be presumed, how can funders and scientists leverage media to improve public health? This panel features two experts working at the intersection of science and communication. Sarah Gollust, PhD,…

The Role of the Funder in Providing Mentoring Experiences for Grantees [HRA Members Meeting, Fall 2019]


During this session, we will explore how funders can provide support for mentoring within their programs as a part of workforce development. We will review a summary of current mentoring practices by HRA members. This will be followed by a talk from Dr. Chris Pfund from the University of Wisconsin-Madison….

Creating Networking and Partnering Opportunities [HRA Members Meeting, Fall 2019]


Strategic partnering is becoming an increasingly valuable approach for nonprofits to advance their missions. This session will present three different types of strategic partnerships: partnering with FDA to accelerate approval of new therapies for rare diseases; advocacy partnering to increase support for a mission-related NIH center; and pharmaceutical partnering related…

Translating the Microbiome: Past, Present, and Future [HRA Members Meeting, Fall 2019]


Research over the last decade has revealed the enormous diversity of the human microbiome and the myriad of ways that it impacts health and disease. Dr. Lita Proctor, PhD, the former Coordinator of the Human Microbiome Project (HMP), will present some of the findings of the HMP, and its second…

Effective Approaches to Increase Diversity and Inclusion in the Biomedical Research Workforce [HRA Members Meeting, Fall 2019]


The research workforce does not reflect the diversity of the U.S. population and individuals from specific groups remain underrepresented in the biomedical research workforce. According to the National Science Foundation, 8% of U.S. residing doctoral scientists and engineers are African American or Black, American Indian, Alaska Natives, or Hispanic Latinos….

The case for a nonprofit independent IRB; improving the ethical review of research. [Webinar, October 8, 2019]


Institutional Review Boards (IRBs) play a hidden but critical role in the common project to advance knowledge and improve life experience. They ensure that the imperatives of science are balanced by the obligation to treat human research subjects with respect, to avoid exploitation and to protect such subjects from unnecessary…

Analyzing Reviewer Scores

Document | Listserv Summary

In response to a listserv post in June 2019, several organizations sent responses regarding their organizations’ analyses of concordance among reviewers’ scores.  Those responses are collected in the linked document. If you have edits to your organization’s info, or if you did not submit any documents and would like to…

Grant Agreement Language

Document | Listserv Summary

In response to a listserv post and a request by the Grants Administration Working group in July 2019, around reporting requirements and payment schedule, several organizations sent language used in their Grant Agreements.  These are compiled in the linked document. If you have edits to your organization’s info, or if…

HRA Member Progress & Financial Report Templates

Document | Listserv Summary

Thank you to the MANY organizations who contributed progress report and financial report templates.  These are compiled in the linked document. If you have edits to your organization’s information or if you did not submit documents and would like to now, please email Maryrose and we will insert them in…

HRA Analyzer/Reporter/Open update [Webinar, June 19, 2019]


Our colleagues from Digital Science (Ashlea, Monika, Jonathan, and Alex) gave an update on three of the HRA Platforms: HRA Analyzer, HRA Reporter, and HRA Open. We talked about what they are and how they work along with how you can participate.  

ORCID ROI for Funders – What Do We Gain With ORCID? [Webinar, May 14, 2019]


Many HRA members have asked what the ROI is for requiring their awardees to use ORCID in the application compared with what funders get from becoming members of the HRA-ORCID Consortium (allowing funders to integrate ORCID). Jamie McKee from proposalCENTRAL gave us a webinar to make it all clear! See…

Staff Scientist Panel [Webinar, May 20, 2019]


Panelists: Shirley Tilghman (president emerita, Princeton University), Lida Beninson (Program Officer, NASEM), and Laura Contreras-Ruiz (staff scientist, Dana-Farber Cancer Institute.) The changing landscape of biological research has changed the day-to-day tasks of the typical research lab so that PIs are more involved in grant writing and lab management, creating a…

NFRI Partnership


In 2017, a formal working group began conducting monthly calls to advance discussions on IP and technology transfer, reimbursement of research operating costs, and how to streamline administrative requirements. These discussions led to a May 16, 2018 meeting supported by the National Academies of Sciences, Engineering and Medicine’s (NASEM) Government…

Evolving Intellectual Property Policy: Overview and Implementation [HRA Members Meeting, Spring 2019]


The research supported by non-profit funders may result in new products, inventions, new technology and new concepts – called intellectual property (IP). These deliverables may provide an unforeseen and potentially significant return on investment for non-profits whose funds helped to support the research from which the IP was derived. Whether…

Supporting the Next Generation of Biomedical Researchers [HRA Members Meeting, Spring 2019]


Changes to policy and practice to attract and retain a vibrant biomedical research workforce have been recently suggested. In this session, HRA members will learn about the NAS Report, Breaking Through, which provides specific recommendations to overcome barriers facing the next generation of biomedical researchers. Additionally, we will hear about…

Cost of Research: Are Current Fellowship Models Still “Current”? [HRA Members Meeting, Spring 2019]


As new discoveries and technological advancements continue to enhance our scientific knowledge, the question arises as to whether current funding models are keeping pace in this rapidly changing environment. Indeed, the advent of sophisticated approaches to solve scientific questions, as well as policies around sharing this information with other researchers…

A Funder’s Role: Advancing Science Through Effective Communication [HRA Members Meeting, Spring 2019]


Science communication is part of a scientist’s everyday life, and in order to be an effective scientist, one must be an effective communicator. Scientists must give talks, write papers and proposals, communicate with a variety of audiences, and educate others. In this session, we will explore the goals and objectives…

Beyond Co-Funding: Stronger Together Part II [HRA Members Meeting, Spring 2019]


Collaboration can be critical to advancing scientific discoveries; likewise, forging strong relationships with other biomedical research grant makers can elevate the work accomplished by each organization, advancing their respective missions. Building on the momentum from the previous Members’ Meeting in Durham, this session will continue the collaboration discussion, bringing new…

Creating a Data Sharing Policy: A Road Map


Is your organization considering adopting a data sharing policy (DSP), but you’re not sure where to begin? During a breakout session of the Data Sharing Working Group at the Spring 2019 Members Meeting, HRA members worked to develop this guide. This “road map” provide an overview of the process, and…

HRA Members present Community Force and Foundant [Webinar, January 16, 2019]


The Grants Administration Working Group held a webinar that featured presentations from fellow HRA members on their respective grants management databases. • Catrina Bryant from the Beckman Foundation spoke about Community Force • Richard Ha from NYSCF spoke on Foundant  

HRA Reporter goes Public [Webinar, January 24, 2019]


HRA Reporter* goes Public!  We are excited to announce that a public version of HRA Reporter is coming soon! Digital Science will be connecting with the designated contact for each organization to determine your organization’s desired level of participation, and is also developing a useful set of FAQs.  We look forward to…

Mentoring in the Research Workforce [Webinar, January 22, 2019]


This webinar featured a presentation by Christine Pfund, PhD, from the University of Wisconsin-Madison, who studies the science of mentoring in STEMM. Dr. Pfund is currently a PI on the NIH National Research Mentoring Network (NRMN) and is the director of the Center for the Improvement of Mentored Experiences in…

Grants Program Analysis Working Group [Call, November 29, 2018]


The Grants Program Analysis Working Group hosted a very productive call on November 29. We’d like to provide you with a few highlights from the call, to keep you updated on what the group is up to. We also encourage anyone interested in this group to join us! If you…

NFRI Workshop [May 16, 2018]


In 2017, a formal working group began conducting monthly calls to advance discussions on IP and technology transfer, reimbursement of research operating costs, and how to streamline administrative requirements. These discussions led to a May 16, 2018 meeting supported by the National Academies of Sciences, Engineering and Medicine’s (NASEM) Government…

HRA Regional Meeting: NYC Tri State Area [January 31, 2018]


The inaugural Tri-State Regional Meeting (co-hosted by NYSCF and the Doris Duke Charitable Foundation) was held in the NYSCF’s office January 31, 2018. With over 15 member organization represented, this meeting was a huge success! The meeting had plenty of networking time as well as presentations focused on “Translational Science…

Preregistration: Improve Research, Rigor, Reduce Bias [Webinar, December 10, 2018]

Document | Webinar

Preregistration is the act of submitting a research plan (often with a detailed analysis plan) to a registry prior to conducting a study. It adds credibility to all research by ensuring that the most rigorous, confirmatory findings are distinct from exploratory research discoveries. Preregistration improves research by addressing: • Selective…

BEST (Broadening Experiences in Scientific Training) [Webinar, December 6, 2017]


BEST (Broadening Experiences in Scientific Training) is an effort by 17 institutions to explore ways of improving biomedical career development. A fraction of biomedical PhDs will take a tenure-track faculty position, so training programs are developing innovated approaches to prepare students and postdocs for a range of career options. BEST…

National Center for Advancing the Career Development of Scientists [Webinar, January 10, 2018]


There has been a large movement to broaden the career development of Ph.D. trainees for a variety of career paths, including those outside of academia but still in research-related positions. Although many such programs exist, and best practices are often shared, there has not yet been a structured, central effort…

RWJF Report and Data Sharing Policies [Webinar, May 10, 2018]

Document | Webinar

The HRA Data Sharing Working Group hosted a webinar where participants learned about the RWJF-funded report including many funder data-sharing policies/practices, and recommendations to funders as they consider their own policies. The report and webinar  were aimed to be informative to organizations with minimal data sharing policy framework to organizations…

NIH’s RFI on Proposed Provisions for a Future Draft Data Management and Sharing Policy

Document | Webinar

The NIH is soliciting public input on proposed key provisions that could serve as the foundation for a future NIH policy for data management and sharing.  Comments using the process described in the document above will be accepted until December 10, 2018. The American Heart Association has drafted a very…

Stronger Together: How Collaboration Can Lead to Greater Impact [HRA Members Meeting, Fall 2018]


Collaboration is often the key to scientific success, bringing together individuals with different expertise and skills to advance the field. This type of teamwork can also elevate and improve the efforts of biomedical research grant makers, bringing organizations together toward a common mission. This session will begin with an introduction…

Implementing New Ways to Model Human Disease for More Effective Drug Discovery [HRA Members Meeting, Fall 2018]


The cost of drug R&D makes up the bulk of the cost of prescription drugs because consumers not only pay for the medicines they are prescribed, but also for all the ostensibly promising agents emerging for the laboratory only to fail in clinical trials. The preclinical drug discovery and testing…

FIRST Group Update [HRA Members Meeting, Fall 2018]


This session will provide context for and discuss recent activities aimed at building effective working relationships between funders and universities. We will report on topics addressed at both the May 16th and November 7th Nonprofit Funder – Research Institution Partnership Workshops. We will discuss next steps for the effort in…

Peer Review Under the Microscope: From Best Practices to Current Challenges [HRA Members Meeting, Fall 2018]


Scientific peer review has long been the gold standard for evaluating grant applications, but different organizations implement peer review in different ways. In addition, issues like unconscious bias and data reproducibility has brought these processes under greater scrutiny. This session will focus on peer review best practices that are informed…

Measuring Funding Impact Through Grantee Outputs [HRA Members Meeting, Fall 2018]


Measuring the impact of a non-profit organization’s grants program can be a difficult, and sometimes ambiguous, process. For example, answering a seemingly simple question like, “how successful are we at accomplishing our mission?”, typically results in more questions than definitive or tangible answers.  One approach to gauging organizational success is…

NFRI Workshop [November 7, 2018]


The Nonprofit Funder -Research Institution (NFRI) partnership hosted its second workshop to advance discussions on IP and technology transfer, reimbursement of research operating costs and how to streamline administrative requirements. Like the first meeting, the second meeting was also supported by the National Academies of Sciences, Engineering and Medicine’s (NASEM)…

HRA Regional Meeting: Metro DC [October 16, 2018]


The theme of the October 2018 Regional Members Meeting (hosted by HHMI) was Diversity and Inclusion.  After an active networking breakfast, Dr, Hannah Valantine, NIH’s first Chief Officer for Scientific Workforce Diversity, kicked off the meeting.  Dr. Valantine presented compelling data as to why diversity matters.  For instance, her data…

Understanding Visual Intelligence & Data Visualization [Webinar, October 24, 2018]


The Donaghue Foundation and the Health Research Alliance joined with HealthDataViz, a Boston firm that specializes in helping healthcare organizations design and present visual displays of data, and offered this webinar on the fundamentals of data visualization. The webinar: Offered guidance on best practices for creating and distributing visualizations Provided…

Listserv Responses: Culling LOIs [October 2018]

Listserv Summary

What is your process of LOI review for a program or mechanism?  What is the count of LOIs you get and what number do you allow to submit full applications?

Shared Member Documents


Click on the category of shared member documents above you are interested in accessing.  If you have other categories of documents you would like HRA to collect please let Annette know.   Also, if you would like to submit your organization’s documents or update the one we have listed for…

Intro to Datavant: Technology to link patient-level healthcare data without sharing personally-identifiable information [Webinar, October 2, 2018]

Document | Webinar

Vera Mucaj introduced Datavant, a San-Francisco based healthcare startup that helps build the pipes for healthcare data sharing at the patient level. Datavant enables linking of patient-level healthcare data across institutions without the need to share personally-identifiable information (PII). Datavant customers use the technology to assemble a more holistic view…

How NCI is Leading on Data Sharing [Webinar, October 9, 2018]


The Data Sharing Working Group hosted a webinar featuring Jaime Guidry Auvil, the Director of NCI’s Office of Data Sharing. Jaime shared the efforts that are in motion at NCI and NIH that aim to promote the data sharing ecosystem. Importantly, she reported on the impressive steps that NCI is…

Finding, Evaluating, and Promoting the Impact of your Research for Nonprofit Funders – how to use the new Dimensions functionality (led by Dimensions). [Webinar, September 18, 2018]


To identify and showcase how organization’s resources have made an impact attendees learned how to answer questions such as: Did your funding keep researchers in the field? Has your research impacted policy? Are there links between patents and your funding or publications? Did publications from your research become prominent, widely…

ORFG “Open 101” Tip Sheets for Research Stakeholders

ORFG has made available a suite of resources designed to help specific audiences understand the benefits of open science. Comprised of a mix-and-match set of tip sheets designed for grantees, program officers and staff, and foundation leadership, the materials can help research funders build effective campaigns for the adoption of…

Indirect Costs (aka “F&A”): There are more to IDC’s than you think [Webinar, September 6, 2018]


In this webinar, we continued the productive dialogue between Universities and Funding Organizations.  We discussed what are “indirect costs” – what are behind these expenses, how may some of these be research project-specific costs, what does this all mean. Be informed and understand the nuances of this discussion as we…

Nonprofit Funding Models

Meeting | Webinar

The philanthropic sector in general and the membership of the Health Research Alliance in particular, is composed of a diverse set of organizations who have contributed to advancing biomedical research by developing human capital; building knowledge and expanding scientific disciplines; supporting institutions; stimulating innovation; translating discoveries into cures, therapeutics and…

How Funders Can Diversify the Healthcare Workforce [HRA Members Meeting, Spring 2018]


Evidence has shown that a diverse healthcare workforce not only improves patient care outcomes, it also allows organizations to be more productive, creative and innovative. Still, minorities face slower promotion rates and are significantly less represented in leadership and academic career positions. At the Spring 2018 Health Research Alliance Members…

Drug and Other Therapy Development Toolkit of Toolkits [Work in Progress]

Under development by the Drug and Other Therapy Development working group, this “toolkit of toolkits” will enable member organizations to more easily identify and access existing and up-to-date resources relevant to DOTD working group goals. Drug and Other Therapy Development References U.S. Food and Drug Administration – for the latest developments…

University-Foundation Relations – BIO Session Summary [FasterCures, June 2015)


In recent years, the nonprofit and academic communities have acknowledged that relationships between nonprofit disease foundations and research institutions are evolving. Although in many ways this evolution presents new and exciting opportunities, these changes have also brought about new conflicts. To advance the discussion around these relationships and brainstorm new paths forward, FasterCures…

University-Foundation Relations Session on Indirect Costs [FasterCures, November 2016]

FasterCures invited a small group of stakeholders to participate in a private session focused on indirect costs, during the 2016 Partnering for Cures conference in New York, NY.

Keeping the Lights On [Nature, November 2014]

Every year, the US government gives research institutions billions of dollars towards infrastructure and administrative support. A Nature investigation reveals who is benefiting most.

Use of HRA Reporter and Researchfish to Evaluate Your Grants Portfolio [Webinar, August 30, 2018]


Arun Karpar from Autism Speaks highlighted the use of HRA Reporter data; while Suzanne Rix from the Association of Medical Research Charities demonstrated the utility of Researchfish.

Spring 2018 Members Meeting Session: ORCID Reducing Burden and Improving Transparency (ORBIT) Project

ORBIT is a strategy to reduce investigator burden and improve funder efficiency through the use of persistent identifiers. ORBIT is a partnership between the NIH and ORCID that expands the ORCID data model to collect faculty profile information. The presentation described efforts to assign Digital Object Identifiers (DOIs) to grants…

Open Research Funders Group Resources

The Open Research Funders Group (ORFG) is a membership-based partnership of funding organizations committed to the open sharing of research outputs.

Implementing a System to Enable Credit for Data Sharing

April 9, 2018 The Association of American Medical Colleges (AAMC), the Multi-Regional Clinical Trials Center of Brigham and Women’s Hospital and Harvard (MRCT Center), and the New England Journal of Medicine (NEJM) launched the Credit for Data Sharing initiative to describe and implement a system to appropriately credit researchers for sharing data.

Board on Research Data and Information/US CODATA

November 1-2, 2017 National Academy of Sciences The mission of the Board on Research Data and Information (BRDI) is to improve the stewardship, policy, and use of digital data and information for science and the broader society.

Data Sharing Goals for Nonprofit Funders of Clinical Trials

November 30, 2017 Sharing Clinical Trial Data Action Collaborative: Data Sharing Goals for Nonprofit Funders of Clinical Trials National Academy of Sciences

Intro to Data Sharing [Webinar #1, July 11, 2017]


This one-hour webinar was the first of two sessions that introduced participants to the various types of data and data sharing platforms currently available. JOURNAL RESOURCES REFERENCED DURING THE WEBINAR PLOS Data Sharing References PLOS Policy PLOS Recommended repositories A Registry of Research Data Repositories Data policy FAQs Preparing clinical…

Funder Data Sharing Policies: Overview and Recommendations [RWJF Report]

A report funded by Robert Wood Johnson Foundation and written by Stephanie Wykstra. Research transparency – sharing data and other materials for further research and re-analysis – is on the rise. Many people and institutions in the research ecosystem have pointed to potential benefits of transparency, from accelerating scientific progress to increasing reliability…

HRA Member Data Sharing Policies

The HRA member data sharing policies that Heather McCartney, HRA’s Data Sharing Intern, has collected can be found above. (To submit your data sharing policies email Maryrose [at] healthra [dot] org)


QB3 includes five incubators, two seed-stage venture capital firms, and a special initiative in medical devices called the Rosenman Institute. QB3 supports University of California researchers and empowers Bay Area entrepreneurs to launch startup companies and partner with industry.

AlzPED database

AlzPED is a database for preclinical studies of Alzheimer’s disease. It includes information on animal models, biomarkers, therapeutic agents/targets, patents, etc

JLABS: part of Johnson & Johnson Innovation

JLABS is a part of Johnson & Johnson Innovation. It is a life science incubator with an aim towards developing healthcare products from current scientific discoveries through a “capital-efficient, resource-rich environment.”

FasterCures “Issues” and “Tools you can use”

FasterCures also has a tab of “Issues” along with links to “Tools you can use” on those topics, a few of which are listed above.  Other Issues with links are Collaborations, IP, Management and Accountability, R and D System, Value and Coverage, and Venture Philanthropy.  There are also case studies available….

FasterCures Toolkit on the TRAIN website

Link to the a toolkit on the TRAIN website which is broken down by different types of partnerships.   On each of the above sites they have links to “Tools you can use.” These include various PDFs or word docs for checklists or agreement templates, informational websites, etc.

Rescuing U.S. Biomedical Research from Its Systemic Flaws [Proceedings of the National Academies of Sciences, April 2014]

In a Proceedings of the National Academies of Sciences publication by Bruce Alberts, Marc Kirschner, Shirley Tilghman and Harold Varmus (2014). Leading academics in biomedical research described a series of issues they felt were leading to a hyper-competitive environment in the US academic system, negatively affecting young researchers, and potentially…

Shaping the Future of Research:  A Perspective from Junior Scientists [Webinar, September 2015]


Jessica Polka, PhD, and Kristin Krukenberg, PhD, both of Harvard Medical School,  organized of the Future of Research Symposium. In a webinar, they presented the primary issues they were seeking to address.

The Report Card for Gender Equality [New York Stem Cell Foundation, 2017]

NYSCF’s Institutional Report Card for Gender Equality helps to incorporate the Seven Actionable Strategies for Advancing Women in Science, Medicine, and Engineering into its own programs and encourage others to do the same.

Seven Actionable Strategies for Advancing Women in Science, Medicine, and Engineering [Cell Stem Cell, March 2015]

Achieving gender equality in science will require devising and implementing strategies to overcome the political, administrative, financial, and cultural challenges that exist in the current environment. This forum proposes an initial shortlist of recommendations to promote gender equality in science and stimulate future efforts to level the field.

Approaches to Achieve Gender Equity in STEM Faculty: Successes, Hurdles and Opportunities for Collaboration [HRA Members Meeting. Spring 2016]

This session presented data on gender inequities in STEM faculty and on the new interventions that academia and funders have implemented to promote retention and advancement of female faculty conducting research on human health. Stephanie Abbuhl, MD, Professor & Vice Chair Faculty Affairs, Department of Emergency Medicine and Executive Director,…

Strategies for Increasing Diversity in the Workforce [HRA Members Meeting, Spring 2018]

This session focused on the challenges and opportunities of diversity and unconscious bias that women and minorities face in peer review in academic science. Anna Kaatz, PhD is the Director of Computational Sciences at the UW-Madison Center for Women’s Health Research. Shirley Malcom, PhD is the head of Education and…

Introduction to Health Services Research Resources: HSRProj and NICHSR [Webinar, August 21, 2018]


On this webinar, attendees were given a tour of the HSRProj database and insights on how to use it. Examples of analytic products and additional AcademyHealth and NLM resources, including HSRR (Health Services and Sciences Research Resources), Health Services Research Information Central (HSRIC), and NICHSR ONESearch, will also be highlighted.

Validity of Peer Review Examined by American Institute of Biological Sciences [Frontiers in Research Metrics and Analytics, August 2018]

The American Institute of Biological Sciences (AIBS) published in August 2018, a literature review summarizing results of empirical tests on the validity of peer review decisions using impact measures of investigator output. These results were published as part of a research topic for the journal Frontiers in Research Metrics and Analytics.

Perceptions of Risk Evaluation in Grant Peer Review by Applicants and Reviewers [American Institute of Biological Sciences, February 2018]

The American Institute of Biological Sciences (AIBS) published findings from research it conducted on reviewer and applicant perceptions of criteria usage and risk evaluation in grant peer review. The manuscript, entitled “Risk evaluation in peer review of grant applications” was published online in late February 2018 in the journal Environment Systems…

Entrepreneurial Review Scorecard [Chron’s and Colitis Foundation, January 2018]

At the Tristate Area Regional Members Meeting in January 2018, attendees heard about the Entrepreneurial Investing Initiative to fund the development of products with the potential to benefit patients. Applicants are expected to propose exceptional scientific research combined with commercial merit. Crohn’s & Colitis Foundation staff and advisors have developed…

American Institute of Biological Sciences (AIBS) Council of Member Societies and Organizations

American Institute of Biological Sciences (AIBS) Council of Member Societies and Organizations 2016 Meeting AIBS hosted a meeting Titled “The Role of Peer Review in Informed Decision-making.”  The meeting tackled questions: Do we know what we need to know about peer review? Does peer review meet the needs of the modern…

Transparency, Recognition and Innovation in Peer Review in the Life Sciences [ASAPBio Meeting Summary, February 2018]

ASAPbio, Howard Hughes Medical Institute, and the Wellcome Trust held a meeting to discuss the merits of transparent peer review. If it is desirable, how can it be implemented and what might be barriers to adoption?  The agenda and links to the slides and talks can be found on the ASAPBio site. Recommendations…

The FAIR Guiding Principles for Scientific Data Management and Stewardship (External Resource)

One of the most valuable resources for HRA and others in the community has been the FAIR Guiding Principles for Scientific Data Management and Stewardship published in Nature.  This article describes four foundational principles—Findability, Accessibility, Interoperability, and Reusability.  These principles should apply not only to ‘data’ but also to the…

Strategy in Action (Fall 2017 HRA Members’ Meeting)

At the Fall 2017 HRA Members’ Meeting in Chicago, Melissa Stevens of the Center for Strategic Philanthropy at the Milken Institute provided  in-depth perspective on the “how to” regarding framing the strategy and next steps for either organizational or programmatic planning. According to Stevens, philanthropic investment in medical research has an…

Making Science Open via Preprints (Fall 2016 HRA Members’ Meeting)

In addition to learning about the COS Preprints service, HRA explored the risks and benefits of encouraging our awardees to use preprints to publish their research.  At a session at the Fall 2016 HRA Members’ Meeting entitled “Understanding preprints, an emerging model for publication in biology” we heard from 3…

Good Practices for University Open-Access Policies (External Resource)

Good Practices for University Open-Access Policies is a valuable resource for universities and funding organizations that want to implement open access policies. Especially of use to funders would be the sections on Drafting a Policy and Filling the Repository, which covers incentives for authors to deposit their work themselves, as well…

Open Science Pre-Registration: Approaches to Ensuring Reproducibility and Transparency (Fall 2017 HRA Members Meeting)

HRA members learned about preregistering research at the Fall 2017 HRA Members Meeting in Chicago in a session entitled “Open Science – Pre-registration: Approaches to ensuring reproducibility and transparency.” Reproducibility and transparency are critical elements to advancing biomedical research while providing scientists a tool for the future to better understand…

The Challenges to Reproducibility in Biomedical Research (Brian Nosek, Fall 2015 HRA Members Meeting)

Dr. Brian Nosek, Executive Director, Center for Open Science Fall 2015 HRA Members Meeting, Cleveland, OH An academic scientist’s professional success depends on publishing. Publishing norms emphasize novel, positive results. Therefore, disciplinary incentives encourage design, analysis, and reporting decisions that elicit positive results and ignore negative results. These incentives can…

Maximizing Research Impact: How Promoting Open and Reproducible Research Helps Funding Organizations Meet Their Mission (December 2016)

A partnership between HRA and Center for Open Science designed to increase openness, integrity, and reproducibility of research HRA partnered with the Center for Open Science to co-host a December 2016 meeting: Maximizing Research Impact: How Promoting Open and Reproducible Research Helps Funding Organizations Meet Their Mission.  The linked Open Science…

Tracking Funding, Reducing Burden and Increasing Transparency

HRA Members Meeting Spring 2018 Given the fragmented system of funding and employing researchers, it is difficult to directly and clearly measure the impact of funding. Some government and non-governmental funders are piloting strategies to reduce the burden placed on investigators by providing information in tedious entering mechanisms and to…

Strategic Planning

More and more stakeholders (boards, donors, patients) are asking for evidence of impact and outcomes. Strategic planning can be valuable to an organization because it provides a sense of direction and outlines measurable goals to demonstrate impact. Strategic planning is the process of determining the goals your organization intends to…

Breaking the mold: New models in research funding

HRA Members Meeting Spring 2018 Traditional research funding mechanisms usually require a regimen of standard documents and peer review processes. At the Health Research Alliance Member Meeting in New York in March 2018, three leading organizations presented their new approaches to accelerate innovation by using novel funding mechanisms. Partnership with…

Implementation of Funder Data Sharing Policies

HRA Members Meeting Spring 2018 At the March 2018 Members Meeting, HRA members and clinicians shared their processes, considerations, and implementation of data sharing policies. Encourage and facilitate reagent and data sharing The St. Baldrick’s Foundation, a not-for-profit organization with the aim of raising funds to help find cures for…

How Funders can Diversify the Workforce

HRA Members Meeting Spring 2018 Evidence suggests that an increased diversity not only improves patient care outcomes, but makes groups also more productive, creative and innovative. Still, minorities face slower promotion rates and are significantly less represented in leadership and academic career positions. At the Spring 2018 Health Research Alliance…

Funding Health Services Research

HRA Members Meeting Spring 2018 The multidisciplinary field of Health Service Research (HSR) focuses on the factors affecting research outcomes including its costs, quality, accessibility, delivery, organization, and financing, with the goal to optimize health services for individuals and populations. At the Spring 2018 Members Meeting in New York, three…

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