Resources

The case for a nonprofit independent IRB; improving the ethical review of research. [Webinar, October 8, 2019]

Webinar

Institutional Review Boards (IRBs) play a hidden but critical role in the common project to advance knowledge and improve life experience. They ensure that the imperatives of science are balanced by the obligation to treat human research subjects with respect, to avoid exploitation and to protect such subjects from unnecessary…

Grant Agreement Language

Document | Listserv Summary

In response to a listserv post and a request by the Grants Administration Working group in July 2019, around reporting requirements and payment schedule, several organizations sent language used in their Grant Agreements.  These are compiled in the linked document. If you have edits to your organization’s info, or if…

Analyzing Reviewer Scores

Document | Listserv Summary

In response to a listserv post in June 2019, several organizations sent responses regarding their organizations’ analyses of concordance among reviewers’ scores.  Those responses are collected in the linked document. If you have edits to your organization’s info, or if you did not submit any documents and would like to…

HRA Member Progress & Financial Report Templates

Document | Listserv Summary

Thank you to the MANY organizations who contributed progress report and financial report templates.  These are compiled in the linked document. If you have edits to your organization’s information or if you did not submit documents and would like to now, please email Maryrose and we will insert them in…

Data Sharing: A Road Map

Document

Is your organization considering adopting a data sharing policy (DSP), but you’re not sure where to begin? HRA members have built this guide to provide an overview of the process and highlight available resources.

Creating Networking and Partnering Opportunities [HRA Members Meeting, Fall 2019]

Meeting

Strategic partnering is becoming an increasingly valuable approach for nonprofits to advance their missions. This session will present three different types of strategic partnerships: partnering with FDA to accelerate approval of new therapies for rare diseases; advocacy partnering to increase support for a mission-related NIH center; and pharmaceutical partnering related…

Translating the Microbiome: Past, Present, and Future [HRA Members Meeting, Fall 2019]

Meeting

Research over the last decade has revealed the enormous diversity of the human microbiome and the myriad of ways that it impacts health and disease. Dr. Lita Proctor, PhD, the former Coordinator of the Human Microbiome Project (HMP), will present some of the findings of the HMP, and its second…

Fact vs. Fiction [HRA Members Meeting, Fall 2019]

Meeting

Public opinion shapes attitudes about science, research funding, and health policy. In a crowded media environment where objectivity and trust cannot be presumed, how can funders and scientists leverage media to improve public health? This panel features two experts working at the intersection of science and communication. Sarah Gollust, PhD,…

Effective Approaches to Increase Diversity and Inclusion in the Biomedical Research Workforce [HRA Members Meeting, Fall 2019]

Meeting

The research workforce does not reflect the diversity of the U.S. population and individuals from specific groups remain underrepresented in the biomedical research workforce. According to the National Science Foundation, 8% of U.S. residing doctoral scientists and engineers are African American or Black, American Indian, Alaska Natives, or Hispanic Latinos….

The Role of the Funder in Providing Mentoring Experiences for Grantees [HRA Members Meeting, Fall 2019]

Meeting

During this session, we will explore how funders can provide support for mentoring within their programs as a part of workforce development. We will review a summary of current mentoring practices by HRA members. This will be followed by a talk from Dr. Chris Pfund from the University of Wisconsin-Madison….

HRA Analyzer/Reporter/Open update [Webinar, June 19, 2019]

Webinar

Our colleagues from Digital Science (Ashlea, Monika, Jonathan, and Alex) gave an update on three of the HRA Platforms: HRA Analyzer, HRA Reporter, and HRA Open. We talked about what they are and how they work along with how you can participate.  

Staff Scientist Panel [Webinar, May 20, 2019]

Webinar

Panelists: Shirley Tilghman (president emerita, Princeton University), Lida Beninson (Program Officer, NASEM), and Laura Contreras-Ruiz (staff scientist, Dana-Farber Cancer Institute.) The changing landscape of biological research has changed the day-to-day tasks of the typical research lab so that PIs are more involved in grant writing and lab management, creating a…

ORCID ROI for Funders – What Do We Gain With ORCID? [Webinar, May 14, 2019]

Webinar

Many HRA members have asked what the ROI is for requiring their awardees to use ORCID in the application compared with what funders get from becoming members of the HRA-ORCID Consortium (allowing funders to integrate ORCID). Jamie McKee from proposalCENTRAL gave us a webinar to make it all clear! See…

HRA Reporter goes Public [Webinar, January 24, 2019]

Webinar

HRA Reporter* goes Public!  We are excited to announce that a public version of HRA Reporter is coming soon! Digital Science will be connecting with the designated contact for each organization to determine your organization’s desired level of participation, and is also developing a useful set of FAQs.  We look forward to…

Mentoring in the Research Workforce [Webinar, January 22, 2019]

Webinar

This webinar featured a presentation by Christine Pfund, PhD, from the University of Wisconsin-Madison, who studies the science of mentoring in STEMM. Dr. Pfund is currently a PI on the NIH National Research Mentoring Network (NRMN) and is the director of the Center for the Improvement of Mentored Experiences in…

HRA Member Grants Management Databases[Webinar, January 16, 2019]

Webinar

The Grants Administration Working Group held a webinar that featured presentations from fellow HRA members on their respective grants management databases. • Catrina Bryant from the Beckman Foundation spoke about Community Force • Richard Ha from NYSCF spoke on Foundant  

Preregistration: Improve Research, Rigor, Reduce Bias [Webinar, December 10, 2018]

Document | Webinar

Preregistration is the act of submitting a research plan (often with a detailed analysis plan) to a registry prior to conducting a study. It adds credibility to all research by ensuring that the most rigorous, confirmatory findings are distinct from exploratory research discoveries. Preregistration improves research by addressing: • Selective…

Evolving Intellectual Property Policy: Overview and Implementation [HRA Members Meeting, Spring 2019]

Meeting

The research supported by non-profit funders may result in new products, inventions, new technology and new concepts – called intellectual property (IP). These deliverables may provide an unforeseen and potentially significant return on investment for non-profits whose funds helped to support the research from which the IP was derived. Whether…

Beyond Co-Funding: Stronger Together Part II [HRA Members Meeting, Spring 2019]

Meeting

Collaboration can be critical to advancing scientific discoveries; likewise, forging strong relationships with other biomedical research grant makers can elevate the work accomplished by each organization, advancing their respective missions. Building on the momentum from the previous Members’ Meeting in Durham, this session will continue the collaboration discussion, bringing new…

Supporting the Next Generation of Biomedical Researchers [HRA Members Meeting, Spring 2019]

Meeting

Changes to policy and practice to attract and retain a vibrant biomedical research workforce have been recently suggested. In this session, HRA members will learn about the NAS Report, Breaking Through, which provides specific recommendations to overcome barriers facing the next generation of biomedical researchers. Additionally, we will hear about…

Cost of Research: Are Current Fellowship Models Still “Current”? [HRA Members Meeting, Spring 2019]

Meeting

As new discoveries and technological advancements continue to enhance our scientific knowledge, the question arises as to whether current funding models are keeping pace in this rapidly changing environment. Indeed, the advent of sophisticated approaches to solve scientific questions, as well as policies around sharing this information with other researchers…

A Funder’s Role: Advancing Science Through Effective Communication [HRA Members Meeting, Spring 2019]

Meeting

Science communication is part of a scientist’s everyday life, and in order to be an effective scientist, one must be an effective communicator. Scientists must give talks, write papers and proposals, communicate with a variety of audiences, and educate others. In this session, we will explore the goals and objectives…

RWJF Report and Data Sharing Policies [Webinar, May 10, 2018]

Document | Webinar

The HRA Data Sharing Working Group hosted a webinar where participants learned about the RWJF-funded report including many funder data-sharing policies/practices, and recommendations to funders as they consider their own policies. The report and webinar  were aimed to be informative to organizations with minimal data sharing policy framework to organizations…

NIH’s RFI on Proposed Provisions for a Future Draft Data Management and Sharing Policy

Document | Webinar

The NIH is soliciting public input on proposed key provisions that could serve as the foundation for a future NIH policy for data management and sharing.  Comments using the process described in the document above will be accepted until December 10, 2018. The American Heart Association has drafted a very…

FIRST Group Update [HRA Members Meeting, Fall 2018]

Meeting

This session will provide context for and discuss recent activities aimed at building effective working relationships between funders and universities. We will report on topics addressed at both the May 16th and November 7th Nonprofit Funder – Research Institution Partnership Workshops. We will discuss next steps for the effort in…

Measuring Funding Impact Through Grantee Outputs [HRA Members Meeting, Fall 2018]

Meeting

Measuring the impact of a non-profit organization’s grants program can be a difficult, and sometimes ambiguous, process. For example, answering a seemingly simple question like, “how successful are we at accomplishing our mission?”, typically results in more questions than definitive or tangible answers.  One approach to gauging organizational success is…

Stronger Together: How Collaboration Can Lead to Greater Impact [HRA Members Meeting, Fall 2018]

Meeting

Collaboration is often the key to scientific success, bringing together individuals with different expertise and skills to advance the field. This type of teamwork can also elevate and improve the efforts of biomedical research grant makers, bringing organizations together toward a common mission. This session will begin with an introduction…

Implementing New Ways to Model Human Disease for More Effective Drug Discovery [HRA Members Meeting, Fall 2018]

Meeting

The cost of drug R&D makes up the bulk of the cost of prescription drugs because consumers not only pay for the medicines they are prescribed, but also for all the ostensibly promising agents emerging for the laboratory only to fail in clinical trials. The preclinical drug discovery and testing…

Peer Review Under the Microscope: From Best Practices to Current Challenges [HRA Members Meeting, Fall 2018]

Meeting

Scientific peer review has long been the gold standard for evaluating grant applications, but different organizations implement peer review in different ways. In addition, issues like unconscious bias and data reproducibility has brought these processes under greater scrutiny. This session will focus on peer review best practices that are informed…

NFRI Workshop [May 16, 2018]

Meeting

In 2017, a formal working group began conducting monthly calls to advance discussions on IP and technology transfer, reimbursement of research operating costs, and how to streamline administrative requirements. These discussions led to a May 16, 2018 meeting supported by the National Academies of Sciences, Engineering and Medicine’s (NASEM) Government…

NFRI Workshop [November 7, 2018]

Meeting

The Nonprofit Funder -Research Institution (NFRI) partnership hosted its second workshop to advance discussions on IP and technology transfer, reimbursement of research operating costs and how to streamline administrative requirements. Like the first meeting, the second meeting was also supported by the National Academies of Sciences, Engineering and Medicine’s (NASEM)…

HRA Regional Meeting: Metro DC [October 16, 2018]

Meeting

The theme of the October 2018 Regional Members Meeting (hosted by HHMI) was Diversity and Inclusion.  After an active networking breakfast, Dr, Hannah Valantine, NIH’s first Chief Officer for Scientific Workforce Diversity, kicked off the meeting.  Dr. Valantine presented compelling data as to why diversity matters.  For instance, her data…

HRA Regional Meeting: NYC Tri State Area [January 31, 2018]

Meeting

The inaugural Tri-State Regional Meeting (co-hosted by NYSCF and the Doris Duke Charitable Foundation) was held in the NYSCF’s office January 31, 2018. With over 15 member organization represented, this meeting was a huge success! The meeting had plenty of networking time as well as presentations focused on “Translational Science…

NFRI Partnership

Document

In 2017, a formal working group began conducting monthly calls to advance discussions on IP and technology transfer, reimbursement of research operating costs, and how to streamline administrative requirements. These discussions led to a May 16, 2018 meeting supported by the National Academies of Sciences, Engineering and Medicine’s (NASEM) Government…

Shared Member Documents

Document

Click on the category of shared member documents above you are interested in accessing.  If you have other categories of documents you would like HRA to collect please let Annette know.   Also, if you would like to submit your organization’s documents or update the one we have listed for…

Understanding Visual Intelligence & Data Visualization [Webinar, October 24, 2018]

Webinar

The Donaghue Foundation and the Health Research Alliance joined with HealthDataViz, a Boston firm that specializes in helping healthcare organizations design and present visual displays of data, and offered this webinar on the fundamentals of data visualization. The webinar: Offered guidance on best practices for creating and distributing visualizations Provided…

Intro to Datavant: Technology to link patient-level healthcare data without sharing personally-identifiable information [Webinar, October 2, 2018]

Document | Webinar

Vera Mucaj introduced Datavant, a San-Francisco based healthcare startup that helps build the pipes for healthcare data sharing at the patient level. Datavant enables linking of patient-level healthcare data across institutions without the need to share personally-identifiable information (PII). Datavant customers use the technology to assemble a more holistic view…

How NCI is Leading on Data Sharing [Webinar, October 9, 2018]

Webinar

The Data Sharing Working Group hosted a webinar featuring Jaime Guidry Auvil, the Director of NCI’s Office of Data Sharing. Jaime shared the efforts that are in motion at NCI and NIH that aim to promote the data sharing ecosystem. Importantly, she reported on the impressive steps that NCI is…

Finding, Evaluating, and Promoting the Impact of your Research for Nonprofit Funders – how to use the new Dimensions functionality (led by Dimensions). [Webinar, September 18, 2018]

Webinar

To identify and showcase how organization’s resources have made an impact attendees learned how to answer questions such as: Did your funding keep researchers in the field? Has your research impacted policy? Are there links between patents and your funding or publications? Did publications from your research become prominent, widely…

ORFG “Open 101” Tip Sheets for Research Stakeholders

ORFG has made available a suite of resources designed to help specific audiences understand the benefits of open science. Comprised of a mix-and-match set of tip sheets designed for grantees, program officers and staff, and foundation leadership, the materials can help research funders build effective campaigns for the adoption of…

Indirect Costs (aka “F&A”): There are more to IDC’s than you think [Webinar, September 6, 2018]

Webinar

In this webinar, we continued the productive dialogue between Universities and Funding Organizations.  We discussed what are “indirect costs” – what are behind these expenses, how may some of these be research project-specific costs, what does this all mean. Be informed and understand the nuances of this discussion as we…

Nonprofit Funding Models

Meeting | Webinar

The philanthropic sector in general and the membership of the Health Research Alliance in particular, is composed of a diverse set of organizations who have contributed to advancing biomedical research by developing human capital; building knowledge and expanding scientific disciplines; supporting institutions; stimulating innovation; translating discoveries into cures, therapeutics and…

How Funders Can Diversify the Healthcare Workforce [HRA Members Meeting, Spring 2018]

Meeting

Evidence has shown that a diverse healthcare workforce not only improves patient care outcomes, it also allows organizations to be more productive, creative and innovative. Still, minorities face slower promotion rates and are significantly less represented in leadership and academic career positions. At the Spring 2018 Health Research Alliance Members…

Drug and Other Therapy Development Toolkit of Toolkits [Work in Progress]

Under development by the Drug and Other Therapy Development working group, this “toolkit of toolkits” will enable member organizations to more easily identify and access existing and up-to-date resources relevant to DOTD working group goals. Drug and Other Therapy Development References U.S. Food and Drug Administration – for the latest developments…

University-Foundation Relations – BIO Session Summary [FasterCures, June 2015)

Meeting

In recent years, the nonprofit and academic communities have acknowledged that relationships between nonprofit disease foundations and research institutions are evolving. Although in many ways this evolution presents new and exciting opportunities, these changes have also brought about new conflicts. To advance the discussion around these relationships and brainstorm new paths forward, FasterCures…

University-Foundation Relations Session on Indirect Costs [FasterCures, November 2016]

FasterCures invited a small group of stakeholders to participate in a private session focused on indirect costs, during the 2016 Partnering for Cures conference in New York, NY.

Keeping the Lights On [Nature, November 2014]

Every year, the US government gives research institutions billions of dollars towards infrastructure and administrative support. A Nature investigation reveals who is benefiting most.

Grants Program Analysis Working Group [Call, November 29, 2018]

Webinar

The Grants Program Analysis Working Group hosted a very productive call on November 29. We’d like to provide you with a few highlights from the call, to keep you updated on what the group is up to. We also encourage anyone interested in this group to join us! If you…

Use of HRA Reporter and Researchfish to Evaluate Your Grants Portfolio [Webinar, August 30, 2018]

Webinar

Arun Karpar from Autism Speaks highlighted the use of HRA Reporter data; while Suzanne Rix from the Association of Medical Research Charities demonstrated the utility of Researchfish.

Spring 2018 Members Meeting Session: ORCID Reducing Burden and Improving Transparency (ORBIT) Project

ORBIT is a strategy to reduce investigator burden and improve funder efficiency through the use of persistent identifiers. ORBIT is a partnership between the NIH and ORCID that expands the ORCID data model to collect faculty profile information. The presentation described efforts to assign Digital Object Identifiers (DOIs) to grants…

Intro to Data Sharing [Webinar #1, July 11, 2017]

Webinar

This one-hour webinar was the first of two sessions that introduced participants to the various types of data and data sharing platforms currently available. JOURNAL RESOURCES REFERENCED DURING THE WEBINAR PLOS Data Sharing References PLOS Policy PLOS Recommended repositories A Registry of Research Data Repositories Data policy FAQs Preparing clinical…

Open Research Funders Group Resources

The Open Research Funders Group (ORFG) is a membership-based partnership of funding organizations committed to the open sharing of research outputs.

Implementing a System to Enable Credit for Data Sharing

April 9, 2018 The Association of American Medical Colleges (AAMC), the Multi-Regional Clinical Trials Center of Brigham and Women’s Hospital and Harvard (MRCT Center), and the New England Journal of Medicine (NEJM) launched the Credit for Data Sharing initiative to describe and implement a system to appropriately credit researchers for sharing data.

Board on Research Data and Information/US CODATA

November 1-2, 2017 National Academy of Sciences The mission of the Board on Research Data and Information (BRDI) is to improve the stewardship, policy, and use of digital data and information for science and the broader society.

Data Sharing Goals for Nonprofit Funders of Clinical Trials

November 30, 2017 Sharing Clinical Trial Data Action Collaborative: Data Sharing Goals for Nonprofit Funders of Clinical Trials National Academy of Sciences

Funder Data Sharing Policies: Overview and Recommendations [RWJF Report]

A report funded by Robert Wood Johnson Foundation and written by Stephanie Wykstra. Research transparency – sharing data and other materials for further research and re-analysis – is on the rise. Many people and institutions in the research ecosystem have pointed to potential benefits of transparency, from accelerating scientific progress to increasing reliability…

HRA Member Data Sharing Policies

The HRA member data sharing policies that Heather McCartney, HRA’s Data Sharing Intern, has collected can be found above. (To submit your data sharing policies email Maryrose [at] healthra [dot] org)

QB3

QB3 includes five incubators, two seed-stage venture capital firms, and a special initiative in medical devices called the Rosenman Institute. QB3 supports University of California researchers and empowers Bay Area entrepreneurs to launch startup companies and partner with industry.

JLABS: part of Johnson & Johnson Innovation

JLABS is a part of Johnson & Johnson Innovation. It is a life science incubator with an aim towards developing healthcare products from current scientific discoveries through a “capital-efficient, resource-rich environment.”

AlzPED database

AlzPED is a database for preclinical studies of Alzheimer’s disease. It includes information on animal models, biomarkers, therapeutic agents/targets, patents, etc

FasterCures “Issues” and “Tools you can use”

FasterCures also has a tab of “Issues” along with links to “Tools you can use” on those topics, a few of which are listed above.  Other Issues with links are Collaborations, IP, Management and Accountability, R and D System, Value and Coverage, and Venture Philanthropy.  There are also case studies available….

FasterCures Toolkit on the TRAIN website

Link to the a toolkit on the TRAIN website which is broken down by different types of partnerships.   On each of the above sites they have links to “Tools you can use.” These include various PDFs or word docs for checklists or agreement templates, informational websites, etc.

Rescuing U.S. Biomedical Research from Its Systemic Flaws [Proceedings of the National Academies of Sciences, April 2014]

In a Proceedings of the National Academies of Sciences publication by Bruce Alberts, Marc Kirschner, Shirley Tilghman and Harold Varmus (2014). Leading academics in biomedical research described a series of issues they felt were leading to a hyper-competitive environment in the US academic system, negatively affecting young researchers, and potentially…

BEST (Broadening Experiences in Scientific Training) [Webinar, December 6, 2017]

Webinar

BEST (Broadening Experiences in Scientific Training) is an effort by 17 institutions to explore ways of improving biomedical career development. A fraction of biomedical PhDs will take a tenure-track faculty position, so training programs are developing innovated approaches to prepare students and postdocs for a range of career options. BEST…

National Center for Advancing the Career Development of Scientists [Webinar, January 10, 2018]

Webinar

There has been a large movement to broaden the career development of Ph.D. trainees for a variety of career paths, including those outside of academia but still in research-related positions. Although many such programs exist, and best practices are often shared, there has not yet been a structured, central effort…

Shaping the Future of Research:  A Perspective from Junior Scientists [Webinar, September 2015]

Webinar

Jessica Polka, PhD, and Kristin Krukenberg, PhD, both of Harvard Medical School,  organized of the Future of Research Symposium. In a webinar, they presented the primary issues they were seeking to address.

Seven Actionable Strategies for Advancing Women in Science, Medicine, and Engineering [Cell Stem Cell, March 2015]

Achieving gender equality in science will require devising and implementing strategies to overcome the political, administrative, financial, and cultural challenges that exist in the current environment. This forum proposes an initial shortlist of recommendations to promote gender equality in science and stimulate future efforts to level the field.

The Report Card for Gender Equality [New York Stem Cell Foundation, 2017]

NYSCF’s Institutional Report Card for Gender Equality helps to incorporate the Seven Actionable Strategies for Advancing Women in Science, Medicine, and Engineering into its own programs and encourage others to do the same.

Approaches to Achieve Gender Equity in STEM Faculty: Successes, Hurdles and Opportunities for Collaboration [HRA Members Meeting. Spring 2016]

This session presented data on gender inequities in STEM faculty and on the new interventions that academia and funders have implemented to promote retention and advancement of female faculty conducting research on human health. Stephanie Abbuhl, MD, Professor & Vice Chair Faculty Affairs, Department of Emergency Medicine and Executive Director,…

Strategies for Increasing Diversity in the Workforce [HRA Members Meeting, Spring 2018]

This session focused on the challenges and opportunities of diversity and unconscious bias that women and minorities face in peer review in academic science. Anna Kaatz, PhD is the Director of Computational Sciences at the UW-Madison Center for Women’s Health Research. Shirley Malcom, PhD is the head of Education and…

Introduction to Health Services Research Resources: HSRProj and NICHSR [Webinar, August 21, 2018]

Webinar

On this webinar, attendees were given a tour of the HSRProj database and insights on how to use it. Examples of analytic products and additional AcademyHealth and NLM resources, including HSRR (Health Services and Sciences Research Resources), Health Services Research Information Central (HSRIC), and NICHSR ONESearch, will also be highlighted.

Perceptions of Risk Evaluation in Grant Peer Review by Applicants and Reviewers [American Institute of Biological Sciences, February 2018]

The American Institute of Biological Sciences (AIBS) published findings from research it conducted on reviewer and applicant perceptions of criteria usage and risk evaluation in grant peer review. The manuscript, entitled “Risk evaluation in peer review of grant applications” was published online in late February 2018 in the journal Environment Systems…

Entrepreneurial Review Scorecard [Chron’s and Colitis Foundation, January 2018]

At the Tristate Area Regional Members Meeting in January 2018, attendees heard about the Entrepreneurial Investing Initiative to fund the development of products with the potential to benefit patients. Applicants are expected to propose exceptional scientific research combined with commercial merit. Crohn’s & Colitis Foundation staff and advisors have developed…

Validity of Peer Review Examined by American Institute of Biological Sciences [Frontiers in Research Metrics and Analytics, August 2018]

The American Institute of Biological Sciences (AIBS) published in August 2018, a literature review summarizing results of empirical tests on the validity of peer review decisions using impact measures of investigator output. These results were published as part of a research topic for the journal Frontiers in Research Metrics and Analytics.

Listserv Responses: Culling LOIs [October 2018]

Listserv Summary

What is your process of LOI review for a program or mechanism?  What is the count of LOIs you get and what number do you allow to submit full applications?

American Institute of Biological Sciences (AIBS) Council of Member Societies and Organizations

American Institute of Biological Sciences (AIBS) Council of Member Societies and Organizations 2016 Meeting AIBS hosted a meeting Titled “The Role of Peer Review in Informed Decision-making.”  The meeting tackled questions: Do we know what we need to know about peer review? Does peer review meet the needs of the modern…

Transparency, Recognition and Innovation in Peer Review in the Life Sciences [ASAPBio Meeting Summary, February 2018]

ASAPbio, Howard Hughes Medical Institute, and the Wellcome Trust held a meeting to discuss the merits of transparent peer review. If it is desirable, how can it be implemented and what might be barriers to adoption?  The agenda and links to the slides and talks can be found on the ASAPBio site. Recommendations…

Strategy in Action (Fall 2017 HRA Members’ Meeting)

At the Fall 2017 HRA Members’ Meeting in Chicago, Melissa Stevens of the Center for Strategic Philanthropy at the Milken Institute provided  in-depth perspective on the “how to” regarding framing the strategy and next steps for either organizational or programmatic planning. According to Stevens, philanthropic investment in medical research has an…

The FAIR Guiding Principles for Scientific Data Management and Stewardship (External Resource)

One of the most valuable resources for HRA and others in the community has been the FAIR Guiding Principles for Scientific Data Management and Stewardship published in Nature.  This article describes four foundational principles—Findability, Accessibility, Interoperability, and Reusability.  These principles should apply not only to ‘data’ but also to the…

Making Science Open via Preprints (Fall 2016 HRA Members’ Meeting)

In addition to learning about the COS Preprints service, HRA explored the risks and benefits of encouraging our awardees to use preprints to publish their research.  At a session at the Fall 2016 HRA Members’ Meeting entitled “Understanding preprints, an emerging model for publication in biology” we heard from 3…

Good Practices for University Open-Access Policies (External Resource)

Good Practices for University Open-Access Policies is a valuable resource for universities and funding organizations that want to implement open access policies. Especially of use to funders would be the sections on Drafting a Policy and Filling the Repository, which covers incentives for authors to deposit their work themselves, as well…

Open Science Pre-Registration: Approaches to Ensuring Reproducibility and Transparency (Fall 2017 HRA Members Meeting)

HRA members learned about preregistering research at the Fall 2017 HRA Members Meeting in Chicago in a session entitled “Open Science – Pre-registration: Approaches to ensuring reproducibility and transparency.” Reproducibility and transparency are critical elements to advancing biomedical research while providing scientists a tool for the future to better understand…

The Challenges to Reproducibility in Biomedical Research (Brian Nosek, Fall 2015 HRA Members Meeting)

Dr. Brian Nosek, Executive Director, Center for Open Science Fall 2015 HRA Members Meeting, Cleveland, OH An academic scientist’s professional success depends on publishing. Publishing norms emphasize novel, positive results. Therefore, disciplinary incentives encourage design, analysis, and reporting decisions that elicit positive results and ignore negative results. These incentives can…

Maximizing Research Impact: How Promoting Open and Reproducible Research Helps Funding Organizations Meet Their Mission (December 2016)

A partnership between HRA and Center for Open Science designed to increase openness, integrity, and reproducibility of research HRA partnered with the Center for Open Science to co-host a December 2016 meeting: Maximizing Research Impact: How Promoting Open and Reproducible Research Helps Funding Organizations Meet Their Mission.  The linked Open Science…

Tracking Funding, Reducing Burden and Increasing Transparency

HRA Members Meeting Spring 2018 Given the fragmented system of funding and employing researchers, it is difficult to directly and clearly measure the impact of funding. Some government and non-governmental funders are piloting strategies to reduce the burden placed on investigators by providing information in tedious entering mechanisms and to…

Strategic Planning

More and more stakeholders (boards, donors, patients) are asking for evidence of impact and outcomes. Strategic planning can be valuable to an organization because it provides a sense of direction and outlines measurable goals to demonstrate impact. Strategic planning is the process of determining the goals your organization intends to…

Implementation of Funder Data Sharing Policies

HRA Members Meeting Spring 2018 At the March 2018 Members Meeting, HRA members and clinicians shared their processes, considerations, and implementation of data sharing policies. Encourage and facilitate reagent and data sharing The St. Baldrick’s Foundation, a not-for-profit organization with the aim of raising funds to help find cures for…

Breaking the mold: New models in research funding

HRA Members Meeting Spring 2018 Traditional research funding mechanisms usually require a regimen of standard documents and peer review processes. At the Health Research Alliance Member Meeting in New York in March 2018, three leading organizations presented their new approaches to accelerate innovation by using novel funding mechanisms. Partnership with…

How Funders can Diversify the Workforce

HRA Members Meeting Spring 2018 Evidence suggests that an increased diversity not only improves patient care outcomes, but makes groups also more productive, creative and innovative. Still, minorities face slower promotion rates and are significantly less represented in leadership and academic career positions. At the Spring 2018 Health Research Alliance…

Funding Health Services Research

HRA Members Meeting Spring 2018 The multidisciplinary field of Health Service Research (HSR) focuses on the factors affecting research outcomes including its costs, quality, accessibility, delivery, organization, and financing, with the goal to optimize health services for individuals and populations. At the Spring 2018 Members Meeting in New York, three…

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