Creating Networking and Partnering Opportunities [HRA Members Meeting, Fall 2019]

Strategic partnering is becoming an increasingly valuable approach for nonprofits to advance their missions. This session will present three different types of strategic partnerships: partnering with FDA to accelerate approval of new therapies for rare diseases; advocacy partnering to increase support for a mission-related NIH center; and pharmaceutical partnering related to a foundation-developed patient registry. Representatives from the partnering organizations will present why and how they partner to create win-win outcomes, and they will be joined by their partnering HRA members on a panel to address audience questions.

Joe Cotter
Research Constituent Engagement Manager | American Cancer Society

Andrea Furia-Helms, MPH (Presentation)
Director, Patient Affairs Staff, Office of Clinical Policy and Programs, Office of the Commissioner | Food and Drug Administration (FDA)

Debbie Drell (Presentation)
Director of Membership | National Organization for Rare Disorders (NORD)

James Jorkasky (Presentation)
Executive Director | National Alliance for Eye and Vision Research (NAEVR)

Steven Brunette, PhD (Presentation)
Senior Associate Director, Patient Affairs and Engagement | Boehringer-Ingelheim

Neil Thakur, PhD
Executive Vice President, Mission Strategy | The ALS Association

Ben Shaberman
Senior Director, Scientific Outreach & Comm Engagement | Foundation Fighting Blindness

Angela Dobes, MPH
Senior Director, IBD Plexus | Crohn’s & Colitis Foundation