Registry and Biorepository Community Call [June 9, 2022]

Registries serve many purposes to meet the needs of patient advocacy organizations. The first half of the call featured an invited speaker to discuss an Across Healthcare registry platform, Matrix ( .The Matrix platform relies upon emergent data technology to enable direct-to-participant and multi-stakeholder portals, applicable both for research and for personalized data collection to inform medical care. The second half of the call was an interactive discussion to facilitate selection of prioritized topics based on community members interests and identifying future speakers.

Jason Colquitt, CEO Across Healthcare, will be the featured guest speaker. Jason a health technology expert and rare disease patient and advocate is passionate about building technology to help patient communities.