Open Science:  Tortoise and the Hare [HRA Members Meeting, Virtual, Spring 2022]

Is your org moving so slowly in implementing open science policies that you may forgo even a participant ribbon? Is your org moving so quickly that you have taken some wrong turns? Open science (including data sharing) was crucial to mitigating the effects of COVID-19. Sharing results and data helped in the development of diagnostics, vaccines, and multiple therapeutics. The future of medical and scientific research is increasingly populated with AI models that learn from existing data and point to the next experiment to be run. However, sharing data and providing open access to data is still not straightforward. On one end, resources, privacy, security, governance, credentials, are some of the obstacles to access, on the other end, excluding data-sharing requirements in grant making misses an opportunity for maximizing funding impact, and leaves huge gaps and unleveled outputs.

During the session attendees learned from fellow member organizations (and external speakers) about new programs or policies that were successful, or failed to bear the expected results. We also discuss the pace of change – why some orgs moved quickly, some decided to move at a slower pace, and some got stuck in the process of implementing even small initial steps.

Rachel Cruthirds
Research Pre-Award Manager | American Heart Association

Tony Kerlavage, PhD 
Director, Center for Biomedical Informatics & Information Technology | National Cancer Institute, NIH

HRA Member Presenters
Jaclyn N. Taroni, PhD
Director, Childhood Cancer Data Lab | Alex’s Lemonade Stand Foundation

Salvo La Rosa, PhD
Chief Science Officer | Children’s Tumor Foundation

Laura Chung
Director of Grants Administration | St. Baldrick’s Foundation

Gabrielle Rushing, PhD
Director, Research | TSC Alliance