Events

Financial Program Sustainability in the Age of Open Science: An Open Science and Registry/Biorepository Joint Community Meeting

9/17/25 3-4PM ET - Online via Zoom - Webinars

As the demand for data sharing and transparency continues to grow, programs that manage registries and biorepositories face increasing pressure to operate within the principles of open science while also ensuring their long-term financial and operational stability. This joint community meeting will bring together leaders from across the nonprofit and research ecosystem to explore how organizations are adapting their sustainability models in response to changing expectations around access, funding, and collaboration. Join a panel discussion on these strategies with representatives from the Crohn’s and Colitis Foundation, Susan G. Komen, and the Center for Open Science.

Registry & Biorepository Learning Community Co-Chairs:

  • Angela Dobes, Crohns & Colitis Foundation
  • Elise Hoover, Foundation for Sarcoidosis Research

Open Science Learning Community Co-Chairs:

  • Anna Hatch, Howard Hughes Medical Institute
  • Sara Jarvis, American Heart Association
  • Britta Magnuson, Health Resources in Action