Dear HRA members,
I am starting this newsletter with major HRA staff news!
Goodbye Annette ☹
After 13 years helping HRA grow to be the fantastic organization it is today, Annette is stepping down to take advantage of other opportunities. I am thrilled for Annette, but of course it’s a huge loss for HRA and me! Annette’s last day as fulltime staff is August 22nd, though she has agreed to help with the transition after that.
Welcome Jenna (again) !!☺
As of September 1st, Jenna Hicks will be moving from her temporary role of IGI Project Lead to a full-time staff position as HRA’s Assistant Director!
8/24/2023 2-3pm ET – Register here
Learn about considerations for international research for patient registries. Our speaker, Josh Lounsberry, has designed, built, and operated patient registries as both an academic researcher and the founder of a CRO providing services to patient organizations, clinical researchers, and pharmaceutical companies.
9/6/2023 2-3 pm ET – Register here
HRA has developed a Bias Mitigation in Peer Review Training as part of our Inclusive Grantmaking Initiative which will be available for use by all HRA members. This session will discuss the goals and instructions for accessing the training. There will be plenty of time for Q&A, so please come with your questions!
9/7/2023 12-1 pm ET – Register here
DataCite will present their research on output tracking and the “Make Data Count” (MDC) initiative. In this webinar, we will learn about DataCite’s efforts to help funders and researchers make their outputs traceable, and how evidence-based research data assessment metrics can be built openly and equitably through the MDC initiative.
9/13/2023 1-2 pm ET – Register here
All are welcome to attend this Open Mic to discuss topics relating to challenges relating to and leveraging AI/LLM to benefit patients, grantmaking, and other areas. What topics should this community tackle throughout the year and at the upcoming meeting? Add your topics, challenges, and any resources to the google doc on this page (login required).
9/14/2023 12-1pm ET Register here
We will continue to explore the NASEM report on Advancing Antiracism, Diversity, Equity, and Inclusion in STEMM Organizations by highlighting information and recommendations related to how Minority Serving Institutions (MSIs) support antiracism and DEI, and how funders can successfully work with these institutions to achieve their goals.
10/2/2023 2-3 pm ET Note Date Change Register here
I will be presenting the second annual “State of the Alliance” to update the membership on HRA’s many activities and solicit your feedback on the priorities we have set.
October 16 & 17, 2023 Hosted by the Alzheimer’s Association
The fall Members Meeting will be hybrid and the meeting will be held at the Pendry Chicago Hotel. Go to the Fall 2023 HRA Members Meeting page for the meeting registration link (this is the link for both in-person and remote attendance), the most current agenda, and a link to HRA’s room block at the Pendry.
All past events (including members meeting sessions) are turned into resources which you can find on this page. You can also find “Key Idea” documents (such as the NASEM Toolkit Key Idea, one for Peer Review strategies, and another for a summary of recommendations from the Disability & Philanthropy Forum. Listserv summaries and a host of other resources are also accessible on this searchable, filterable Resources for Members page.
All the best,