Thank you to Erik Lontok, PhD, Director of Research, at the Barth Syndrome Foundation for compiling the responses to his listserv post on 2/13/2023. ADDITIONAL SHARED RESORUCES ARE WELCOME! Original... read more →
Good afternoon HRA, Thank you very much to the members that responded and shared their NDA/COI agreements (attached). Of note, the majority involved a reviewer’s signature, some an acknowledgement via... read more →
Dear HRA Organizations: The Fanconi Anemia Research Fund (FARF) is looking into the possibility of incentives (monetary and non-monetary) for our external reviewers for our grant proposals. FARF research grant... read more →
Dear HRA members, We recently completed an evaluation of a program supporting innovations in a specific disease area, sickle cell disease. However, we are having trouble finding comparisons against which... read more →
Hi all, DTRF is trying to increase the diversity within our natural history study. I'm interested if anyone has any ideas on improving diversity in an NHS or if anyone... read more →
We have compiled the responses to a listserv post looking for recommendations for companies or people who do DEI education. The query specifically did not want an online course, but... read more →
Many HRA members are shifting their scientific conferences to virtual. This document compiles tips, benefits, and lessons learned for those planning to switch conferences or meetings to virtual in the... read more →
In response to a listserv post in June 2019, several organizations sent responses regarding their organizations' analyses of concordance among reviewers’ scores. Those responses are collected in the linked document.... read more →
In response to a listserv post and a request by the Grants Administration Working group in July 2019, around reporting requirements and payment schedule, several organizations sent language used in... read more →
Thank you to the MANY organizations who contributed progress report and financial report templates. These are compiled in the linked document. If you have edits to your organization's information or... read more →