Under development by the Drug and Other Therapy Development working group, this “toolkit of toolkits” will enable member organizations to more easily identify and access existing and up-to-date resources relevant to DOTD working group goals. Drug and Other Therapy Development References U.S. Food and Drug Administration - for the latest developments in regulatory policies and regulatory science. National Institute of Neurological Disorders and Stroke - resources and tools needed to advance the fundamental knowledge about the brain and nervous system and to use that knowledge to reduce the burden of neurological disease. QB3 - hub for innovation and entrepreneurship in the life sciences: a... read more →
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If you are not happy with the results below please do another searchORBIT is a strategy to reduce investigator burden and improve funder efficiency through the use of persistent identifiers. ORBIT is a partnership between the NIH and ORCID that expands the ORCID data model to collect faculty profile information. The presentation described efforts to assign Digital Object Identifiers (DOIs) to grants – effectively creating a universal funding identifier with ORCID IDs in its metadata.
At the Fall 2017 HRA Members’ Meeting in Chicago, Melissa Stevens of the Center for Strategic Philanthropy at the Milken Institute provided in-depth perspective on the “how to” regarding framing the strategy and next steps for either organizational or programmatic planning. According to Stevens, philanthropic investment in medical research has an outsized impact. Considering that it accounts for 3% of the total investment in medical research, it has a much bigger impact. Stevens pointed to the following reasons: Philanthropy takes on more risk. It is much more nimble, quick, and flexible. Philanthropy is also patient and in it for the long... read more →
In addition to learning about the COS Preprints service, HRA explored the risks and benefits of encouraging our awardees to use preprints to publish their research. At a session at the Fall 2016 HRA Members’ Meeting entitled “Understanding preprints, an emerging model for publication in biology” we heard from 3 speakers clearly articulating how preprints have the potential to increase the speed of research by decreasing the time to publication and to make research publications available to all. The goal of this session was to increase funders’ knowledge on: preprints, the scientific community’s views on preprints, and a funder’s decision... read more →
HRA Members Meeting Spring 2018 Given the fragmented system of funding and employing researchers, it is difficult to directly and clearly measure the impact of funding. Some government and non-governmental funders are piloting strategies to reduce the burden placed on investigators by providing information in tedious entering mechanisms and to improve funder efficiency by using persistent identifiers. Managing funding and investigator data During the Members Meeting in Spring 2018, the National Institute of Health (NIH), ORCID and Crossref described their efforts to better manage funding and investigator data. The ORBIT project, a partnership between NIH and OCRID, expands the existing... read more →
HRA Members Meeting Spring 2018 At the March 2018 Members Meeting, HRA members and clinicians shared their processes, considerations, and implementation of data sharing policies. Encourage and facilitate reagent and data sharing The St. Baldrick’s Foundation, a not-for-profit organization with the aim of raising funds to help find cures for children with cancer, is committed to improve transparency and openness of research. Liz Jackson, Director of Grants Administration at the St. Baldrick’s Foundation, explained that applicants must write a “data sharing proposal on how they plan to publish and share their results.” Using Proposal Central to implement their application forms... read more →
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1998: Strengthening Health Research in America: Philanthropy’s Role The Health Research Alliance’s roots can be traced to 1998, when a group of private funders convened at a meeting jointly organized by the American Cancer Society, the Burroughs Wellcome Fund, the Howard Hughes Medical Institute, and the Pew Charitable Trusts. The meeting, “Strengthening Health Research in America: Philanthropy’s Role,” considered the future of biomedical research in light of major changes in funding streams for research within academic health centers. Early 2000's: Role of Private Funders in Training the Next Generation of Biomedical Scientists The group met again in 2000 and 2002 to consider... read more →
OPEN SCIENCE FOSTERS AN ENVIRONMENT WHERE RESEARCH CAN FLOURISH -- PUSHING INNOVATION, IMPROVING HEALTH, AND SOLVING GLOBAL PROBLEMS. “An old tradition and a new technology have converged to make possible an unprecedented good…” The opening line of the Budapest Open Access Initiative declaration, the published February 14, 2002 and commenced this “Open Access” movement in science. It’s been sixteen years since the call to provide open access to publications, which SPARC defines as “free, immediate, online availability of research articles coupled with the rights to use these articles fully in the digital environment.” Since this movement started, the demand for... read more →
Facilitating collaboration and building partnerships are at the core of HRA's mission. From bringing members together to develop shared solutions to common challenges, to making available resources, tools and templates that have helped create partnership models, to sharing lessons learned and best practices, HRA drives collaboration across all of its programs, priorities, and platforms. Facilitating Collaborative Relationships Among HRA Members Program The Health Research Alliance (HRA) would like to thank the attendees of the November 2019 Collaboration Workshop and the workshop's sponsors the Rita Allen Foundation, AACR, PEW and JDRF. The support of these HRA member organizations enabled HRA to... read more →
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After years of trying to launch our own HRA ORCID consortium, and extensive consultation with ORCID staff and others, we have identified a very good option for members who want to belong to an ORCID Consortium. It isn’t an HRA Consortium but an existing consortium called the ORCID US Community. This is a very well-organized and well-resourced consortium that HRA members can join. It is managed by Lyrasis. We think this is a great option for 4 main reasons: Established management and tech support to make participation much easier Lower price ($4,300 now but increases to $4,800 as of... read more →